leeann
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Hi Linda,
I was going to be on the FOLFIRNOX clinical trials at U of C but after genetic testing that I would not be able to tolerate it, so I’m on gem/cis.
Few weeks ago I was there for my chemo, I met a lady(also cc pt) who was on that clinical tirals FOLFIRINOX for 6 months had a great responds and she doesn’t even take pain meds anymore. But because it’s so hard on your body and I think the duration of trial is only for 6 months, so she’s on gem/cis now.
Hope your husband gets great results with little side effects.Thanks for sharing Percy.
If it’s not approved by FDA for cancer treatment, I wonder if insurance is going to cover it….Hi
Thank you Lainy, Mark and Pam.
I went to my old hospital(UIC) where I had resection to pick last pet/ct copy for 2nd opinion. While I was there I called my surgeon and told them what was going on. I had no appt but wanted to see me right then. Good thing I had my last ct-(since started chemo) with me thinking that I might get to see him. They all looked at my ct and said he doesn’t see lymph nodes involvement??? but its around portal vein so it’s very difficult to do surgery. He is going to send my ct to his colleague in different state does nanoknife. SO I hope to hear some good news soon.Hi Cristerry,
I’m on gem/cis like your husband.
This is what my experince with chemo.
I get steroid with chemo on friday. Usually I get body ache that evening.
Con’t taking steroid (pills) sat and sunday so those 2 days I feel great, but monday and tuesday come I have no energy so I do sleep or lay around a lot. By wed. I feel better and thursday back to almost normal again. That’s what I’ve been experincing for last 3 cycles. As far as eating goes, I have no problems and sometimes I wake up middle of night hungry so I have mid night snack so I could go back to sleep(I can’t sleep when I’m hungry).
I hope that gives you some idea.
Wish your husband best of luck with chemoHi Holly,
Welcome to amazing support group. I was diagonosed about 1 year ago. I had resection with neg. margins with no node involved so they decided to do nothing at that point. But sadly it came back about 3 month ago with a new tumor where they resected and few nodes involved. My only option is chemo for now. I’ve been on gem/cis and it helped a little. Thankfully I had a very little side effects with chemo. I try to get blood work every month and scan every 3 months. Sometimes, I ask for sooner if I don’t feel right. Like last scan was a after 3 cycles of chemo even they wanted to wait. I’m not a kind of patient wait for them to tell me what to do. I do my homework and ask lots of questions and demand things if I don’t feel right.
I read lots of post on this site and learned so much from their experiences helps me ask the right questions when I see my onc and knowing that I get so much support from everyone here.
Stay positive and let us know how we can help.
LeeAnn
Hi everyone,
Got some good news!!! I went in yesterday to get a new CT and to see my onc. From last week’s blood work- tumor marker being double since I started chemo- I expected the worse news like new tumors and got bigger etc.
Nope, actually it showed shrinkage on main tumor and stable. No new lesions!!! How about that!!! I was so happy to hear that. So they gonna keep me on gem/cis for now.I just want to say “Thank you” to all for your support and encouragement. I don’t know what I would do without you guys.
LeeAnn
Thanks to all.
I know what you are all saying but I couldn’t help being disaaponited. My Ca19-9 was on up trend since after surgery. My lowest was 79 a month after surgery and was going up since then. Since this was my first chemo, I had a such high hope for the number to go down or any improvement and didn’t happened. I know this isn’t the end of the world, but…….I’m sure you all understand. Thank you all again for your support and I will try to stay positive.I just finished 3 rounds of gem/cis. Since I haven’t had tumor marker checked since I started chemo, I asked for one today to see if there’s any changes.
Well, almost at the end of chemo they had blood test result. Bad news!!!
I don’t think chemo did anything for me. My CA 19-9 was 340 when I started chemo, today it was 790. I’m so upset and sad. I’m getting CT next Friday and discuss what to do next. I knew something was up. I had hardly any side effects at all. It was way too good to be true. At this point I don’t want standard treatment, any suggestion?Hi
I’m on gem/cis also. The first day(fri) after chemo I have major body ache all night but feels much better the next day. I take Dexamethasone for 2 days after chemo and that gives me more energy I think. The 4th day I have no energy but bounce back on 5th and 6th day. I hope that gives you some idea.
wishing your husband minimum side effects with chemo and good results.
