leighang
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If nothing else, try Ensure. After awhile, it was the only way we could keep nutrition going for my mom. Before she got to liquids only, potato soup and mashed potatoes were a great option as well. We also kept her on stool softeners and would add some prune juice to high pulp OJ to keep her bowels going and that seemed to work.
I’m so very sorry for what you are going through with your husband. My mom was 68 as well and extremely active before her diagnosis – just another reason it was so hard to wrap our heads around it when she was diagnosed.
Keep doing what you are doing – looking for treatment options as well as ideas to keep him comfortable and hydrated. It takes a village and I have found that the people on this site are so very helpful. It was too late for my mom; but I have found comfort in the fact that even AFTER her passing, these kind folks wrap their arms around you and try and offer any advice and all the support they have.
Praying for you both,
LeighanThanks to you all for your kind words. I hate that so many people have experience with this, but it is comforting at the same time. I’m trying to learn as much as I can, and I hope to someday – when I’m strong enough – be able to volunteer and bring awareness about CC. I think my mom would want me to do that.
Many blessings to all of you!
Leighan
I am so so sorry for the loss of your mother. I lost mine, too, about a week after you did. You are right – nothing can prepare you for the loss of your mother; even when you’ve begun to pray for an end to her suffering. I’m glad she could do it on her terms, when she was ready and was where she wanted to be.
Many prayers for you and your family – the weeks and month’s ahead will be difficult for us, but our mothers made us who we are and will continue to be there in spirit.
Hugs to you ~ Leighan
I’m so so sorry. I lost my mom in 23 days to this disease and so we had to make decisions quickly. We had to call in hospice and also 24 hour caregivers within the last 10 days of her life. Hospice will keep her comfortable and allow the family to be her family and not her caregivers. It doesn’t necessarily mean the end is imminent; but her comfort will be their priority. If some treatment option or trial becomes available, you can always stop hospice. I’m sorry she’s having so much trouble eating….being sick while you are sick has to be awful.
You are wonderful for going to see her. It’s hard to watch, I know, but having her family around her will mean so much to her. Many hugs and prayers to you and your family.
Hospice is a wonderful addition to your team. And as someone mentioned in a previous message, it will help take the pressure off of YOU so you can spend more time being her child rather than her caregiver. I’m so thankful to our hospice team; they were amazing. I lost my mom in 23 days on June 8, 2014, and hospice was called in about 10 days before her death. They know from experience how to take care of the patient better than we do….but you are still in control.
I felt the same way about my mom as you do. Who do I ask all the silly questions I’ve asked my entire life? Who do I call at 4:30 every day on my way home from work. It’s devastating. But I know somehow I will adjust to life without her. Enjoy all the time you have with her and consider letting hospice take over her care. You will be surprised how quickly they will become a part of your family.
Prayers for you and your mom from Oklahoma
