lilack
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Thank you for posting all of this interesting information. You’ve done a lot of research. My mom is also being treated at Sloan Kettering and I also have to say that her doctor is not very “creative” with different treatment options. We’ve mentioned a few ideas to him but for now he seems to want to stick to the standard care therapies. We did consult with Dr. Bruchner of Bruchner Oncology in NYC who has a great track record with CC patients and uses various treatment therapies tailored to individual patients. Unfortunately, he is not covered by my parents’ insurance so mom couldn’t be treated by him. I assume that you live in NYC area, so if you’re looking for another opinion, this may be a good option.
Thanks again for posting your research and all the best to you mom.Hi Kate,
My family and I are also from Poland (Stalowa Wola) but now live in the United States. My mom who is 56 has been fighting CC for the past 5 months. As Lainy has said, Gemzar is usually administered with another drug such as Cicplatin. There are other options and combinations though. My mom has been tolerating this combo well but I know that the doctors give her nausea medications, as well as steroids for the few days after her treatment. Also, I would suggest that you listen to this webinar http://www.cholangiocarcinoma.org/treatment.htm that took place several weeks ago. As you scroll down, it’s the second one titled “Review of Chemotherapy Treatment in Bile Duct Cancer”.
All the best to your mom.Hi Maryjo,
I am sure that you’re going to get much more knowledgable advice from other members soon but I will gladly share my experience with you meanwhile. My mom has inoperable cholangiocarcinoma and has just finished her series of chemo. They did a CT scan right after and found that none of the tumors on her liver have grown in the last four months, which her oncologist considered to be good news. Because she did well on the chemo, he wanted her to start another series in hopes that it will continue keeping the cancer at bay or maybe even shrink some of the tumors. So she just finished her first two weeks of the new treatment and feels great.
I would advise you to talk to your husband’s oncologist to ask for his plan for the future.
Stay strong,
MonikaLainy,Jim- thanks so much for your thoughts and advice. Gavin, mom is taking Spironolactone and has been on it for almost two weeks. Her tummy doesn’t seem to be getting any smaller, although she says it’s softer and yes, her ankles are a little swollen as well. I’m thinking that she should give it maybe another week or so and then ask the doctor for another medication, as I see that there are a few out there..
