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Thank all of you for your thoughts and prayers. Dad services are being held on Saturday, and I am trying to stay strong for him. I have the support of my Brothers and extended family members, however things have gotten quite ugly between my StepMother and her possessiveness and control of our Father after he passed. Parts of my bad experiences with the hospice care he recieved at the end, were also due to her. As I said, when I can bring myself to tell the story, I will share it. I am forwarning everyone that it will be a very long post.
Thanks Again to all of you,
My thoughts and deepest sympathy go out to you and your family. Your Dad was a lucky man to have such a loving and caring Son. Take great pride in the fact that you were there for him through it all, I am certain you made him very proud.
I have sent you a couple e-mails in the past few days.
You are correct, my new e-mail will not be up and running until tomorrow sometime.
Until then, you can send it to Wolfe39@ptd.net, and my new address has changed to Dane4Me@ptd.net. You should have gotten quite a few e-mails from me though.
I also just sent one tonight with pics of Dad and Me.
Funny you should mention that. My 73 year old Dad has been complaining of the same thing for months. He has not had any chemo or other treatments. I guess we can say that maybe it is the disease, I am not sure. It does effect his hearing though, which is already not good.
Thanks for keeping us in your thoughts……It means alot……..
Hugs Your Way,
Please know that you are never alone and you always have a place to come and let your feelings out in the open. I too am losing my Dad, so I know how you must feel.
This support group of people here on this board are wonderful. Everyone here is dealing with the same feelings and emotions. For us the cargivers, it is a place to talk openly to others in the same situation, or those that have lost thier loved ones. I know I find much comfort in knowing I am not alone.
My thoughts are with you and your Dad. Treasure every minute you have with him and make memories to hold in your heart. Both of us will face the reality of losing our best friends at some point in time, but as so many have told me, don’t think about that, think about today and how you can make it a good day. Be there for him, comfort him, let him know how much you love him, never let anything go unsaid.
Hugs and Thoughts of good days to you and your Dad,
I am not sure if I can fully understand what you must be going through because I am losing a Father not a Husband. All though no matter how the loved one is related to us, we all go through many of the same emotions, it is just a very different kind of loss that we experience.
Husband’s are our partners, best friends, and we do spend everyday with them.
I would think that what your husband is feeling is anger. He is tired of being sick and tired of the treatments that aren’t making him feel any better. The anger, does cause depression and a feeling of giving up. They just get tired of fighting. In your Husbands case, it sounds as though he may still have a chance to fight this disease and be able to spend more time with the ones he loves. Don’t let him give up, he is internalizing all of his feelings, and he has to let them out. Sometimes outside support helps, but not everyone can talk to a stranger.
Most importantly, you have to take care of yourself too. Obviously the way he is acting is taking its toll on you emotionally, and sooner or later physically. When my sister was dying of a rare cancer at 26 years old, she was angry at everything and everyone around her. You could not say anything to her that made her feel better, she was just bitter. Your husband is young, and I am sure he is thinking how unfair this disease is. He is too young to be faced with the possibility of leaving this world and leaving his loved ones behind, especially you. I am certain he doesn’t want to give up the fight, but right now, he feels so helpless and tired. We all have to remember that when you are the person with the cancer, they have a strong feeling that they are somehow letting us down too. They are worried about what will happen to us should they lose the battle.
You and your Husband are in my thoughts, and I hope he realizes how much you love him, and is able to get through this stage of anger and depression.
Much Love Coming Your Way,
My Dad has the same pain in his abdomen, and for 6 weeks nothing helped. He now has a Fentanyl Patch (Duragesic Patch), that has finally given him much relief. Most days he complains of no or little pain. He also has Oxycodone for breakthrough pain if needed.
Not sure if this will help, but it did for my Dad. I sure hope they get him something soon.
You and your Husband are in my thoughts as I know very well how frustrating this is for both of you.
Hi Barb H.
Have they ruled out MonoNucleosis? Seems to me that Michelle is exhibiting alot of those symptoms. I am so sorry that you and she are going through this. It just seems as if diagnosing things takes forever and sometimes we don’t get the answers.
Whenever I am stressed about anything it comes out in my skin. It is not the shingles, as I have taken care of many people with that disorder in the past. As of today, it is not that bad. It comes and goes, pretty much dependent on what is going on at the time.
With all that is going on in your life, I thank you for caring about us. It takes special people like you to make this world a better place to live in. I am sending many hugs your way, and please keep in touch even if you don’t visit this site often. You can also feel free to send me a private e-mail if that is easier.
I will wait to hear about Michelle, and you take care of yourself.
Hi Missing U,
I hope this message finds you well. So very much of what you have said is true. The days here are getting a little shorter and the temperatures are beginning to cool.
Winter has always been a bad time of year for Dad. He absolutley hates the cold.That comes from many years working in it and suffering frostbite etc. He always goes into a little state of depression this time of year. This past spring, we should have known that something was wrong with him, as it is the time of year that he comes out of the winter blues and is very active outside, even if he were just puttering in the garage and barn. He didn’t do that this year. He was tired most of the time, and just would say he felt yucky. Of course he didn’t feel bad enough to go to the Doctor’s. He just assumed it would pass.
I am sure you take great comfort in knowing that you were so very close to your Dad and that you were with him when he left this world. I am certain I will find much comfort in that also.
It is the part of saying goodbye that I find the most difficult. I can no longer live in denial, because any hope we had has been taken away. It is all such a big reality now. Having family and friends coming to visit, and say thier goodbye’s, while he is still here with us, is upsetting to say the least. When visits are nearing the end, sometimes Dad gets up and goes back to rest, as if he doesn’t want to have to say bye, thinking maybe its the last time he will see them. Thats just my thought, but he does it often. I suppose thats his own way of dealing with it.
I am trying to find my inner strength to get me through the days, weeks or maybe the months ahead. I feel as though my world is forever going to change, and how will I cope. Dad handles it all with his humor, so you can’t get serious. I think it makes him very uncomfortable to see anyone sad. So we just put on our smiley faces, and live each day to the fullest. What will I do when the humor is gone forever? What will I do without him?
I miss him already, and yet he is still here with me.
I suppose I will feel as you do, taking much comfort in knowing that I was here for him. Helping him leave this world, just as he watched me come into it 45 years ago.
I see so many people that lose thier parents, just pick up and move on without missing a heartbeat, how I ask myself?
Thanks for all your Prayers and Caring,
Bright Blessings Back to You,
LisaOctober 24, 2007 at 12:50 am in reply to: My 73 Year Old Dad, Diagnosed 2 days ago with Advanced CholangioCarcin #16684
I replied to your post in the experiences sectionas we were asked to do.
It has been quite busy around here the last couple days with Family visiting and all the Hospice Team Members making thier initial visits.
To say the least, it gets exhausting sometimes, when you are already tired and then have all the company to entertain and prepare meals for. I guess in a way it is good to keep my mind occupied, but after everyone is gone, there’s the clean up etc. Then when I can no longer stand, and try to rest, my mind starts working and doens’t let me sleep.
Dad’s condition has not changed much, he is still eating very little and vomiting quite a few times a day. On Saturday, we had a problem with him being constipated so bad, I thought we were going to have to call Hospice out. He was in so much pain and discomfort, and it had been 8 days since he last had a bowel movement. We had just started him on Senokot-S, twice daily, but he was already blocked up. I had ran to the nearest drug store to pick up a fleets enema and was back in record breaking time, but he had finally gone. He looked like something posessed by that time. He was soaked with sweat, had vomited all over on top of everything else, and was just wiped out. He had company coming that afternoon, and I wasn’t sure how he would be.He drank some soda and finally went and took a nap for several hours.
My oldest brother and his wife came around noon time, and he did get up. He looked much better, and actually was talking and joking like normal. They stayed for about 2 1/2 hours, and then my little sister and her husband came just as they were leaving. They stayed overnight, so he said his hello’s and went back to bed for another mega nap. He was able to spend time with them later that evening. Upon awakening Sunday morning, he was complaining of alot of pain, once again his patch was just changed out earlier that morning, and he was having breakthrough pain and then had a bout of vomiting. He took some Oxycodone, and went to try and sleep the pain away. My second oldest brother came to visit later in the afternoon, and we all sat outside on the deck since it was such a beautiful day, and Dad did manage to come down for about an hour or so. You could see in his face that he was still very painful and was just not focusing very well. He finally went back to bed and slept until the next morning. He got up fairly early, and felt much better, once again the pain was under control. He was joking and doing it very well. He took Wooden Match Sticks, and wrapped one of his address lables around them to make a funeral flag, and said that he was going to pass these out to people he wanted to attend his cremation. He said if the incinerator did not ignite, that everyone could light thier matches and get it started. Only my Dad could pull this off, and make people laugh.
Yesterday(Monday) ,he was in good spirits and actually came outside and Dad and I managed to spend some quality time alone for once. Mom had gone to the store,so we were alone. I was able to have my heart to heart talk with him that I never thought I could.
It felt so incredible to finally tell him how much I Love him, and that I don’t know what I am going to do without him. We talked of some old times, but mostly, about his cancer and dying wishes. I told him that I would always be here for him and whatever he wanted or needed I would get or do. He told me that he knew all that, and that he Loved me too. You have to understand, that in all my life, I have only heard him say those words but 4 times. I can now hold those words close to my heart forever and know that he meant them. He hugged me and kissed me, and I thought I would just melt away. DAD, I LOVE YOU.
He spoke of his children, children that never call on Father’s day or send him a birthday card, and although he says it never bothered him, obviously it does or he would not have bought the topic up. I felt so bad for him, and it is something that has bothered me always.
I understand that everyone is busy with thier own lives and families, but to call every once in awhile or to send a card isn’t that much to ask. Thats were my anger lies, because now, when his time here is short, everyone seems to care about what is going on. They all want to know what is happening and what decisions are being made. Well as many of you have said to me, I have to let the anger go, and they all have to deal with thier own guilt. I know in my heart, that I have always been here for my Dad, and will be until the very end.
Mom and I went to the funeral home and made the arrangements, which was hard on both of us. Financially, they have been in trouble for many years, and he only has a very small life insurance policy to cover the cost of the funeral expenses. Not one of his children have offered any financial help to date. Out of site, out of mind. I guess they just figure Steve and I will pay for all of the costs not covered, as we have taken care of them for many years, hence why they live here with us. Steve has been more of a son to him than any of them as far as I am concerned. I will do whatever it takes, to make certain things are taken care of. I also promised my Dad, that we would continue to take care of Mom after his passing.
Sometimes it is all so overwhelming, and it is just beginning.
I guess I have babbled enough again for one night, and thank you for letting me vent some of my feelings. It feels goog to get them out in the open.
Thanks for all your Thoughtfullness,
Great News Jeff, so glad all is okay………You certainly don’t need the added stress.
Take Care, LisaOctober 23, 2007 at 5:22 pm in reply to: My 73 Year Old Dad, Diagnosed 2 days ago with Advanced CholangioCarcin #16683
Hi Missing U,
I will be posting replies with updates tonight. I just have been really overwhelmed with all thats going on.
Barb, I will be posting tonight hopefully. Just have not had time.
Love and Hugs,