lisa
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January 13, 2011 at 11:18 pm in reply to: Susan G. Komen sueing other cancer research efforts #46791lisaSpectator
This is outrageous. This confirms my intuition that SBK is in it for the money, and finding a “cure” (oh, I used the word cure, will I be sued?) is not the primary goal. Big charities like SBK get big money that is used to fund big salaries for the people who work there. Just because you call yourself a non-profit does not mean you do not personally profit from your charity. SBK shows little concern for any other cancer research, as this article demonstrates. They show no concern for victims of other cancers, as I have personally experienced.
What are they going to trademark next? The color pink? Shame on them.
I support the American Cancer Society. Good people doing good work. Fighting all cancer. This morning I signed up to be on my daughter’s team. She is a Team Leader and is very involved in the yearly Relay for Life.
lisaSpectatorHi Nancy, my daughters and I drove up through Revelstoke and kamped at the KOA near town. Unbeknownst to us, the KOA was about 100 yards from the huge railroad crossings. We didn’t get a lot of sleep that night! But the scenery was fantastic. We went up through to Banff and Jasper, then over to Edmondton and back down through the Crowsnest Pass on our way home. It was a wonderful vacation, and the last we had altogether before I got sick.
lisaSpectatorRick, I pray for you and Cindy every night. I am sorry that you are feeling down and in pain. I hope that you will be able to take care of the pain and the other issue that you are facing. I don’t know if this helps, but I have had perionteal mets for about 6 months now and still feel ok with no ascites. What I mean to say is that the ascites might go away or not effect you too bad. Hopefully you will be able to have more time feeling better for your self and your family.
I really believe in the power of prayer. After 3 1/2 years I have mets to the lungs and perionteum, multiple hospital stays, unnumbered chemo changes, uncounted stent replacements, and still have very little pain or physical effects aside from fatigue. I attribute my health to the good Lord and the power of prayer.
lisaSpectatorLike others, I am grieving for Kris’s loss. While I didn’t know her in person, I was inspired by her attitude and hope and awed by the love she shared with Hans. It has been a difficult week for me, knowing we have lost another hero.
lisaSpectatorI’ve had cholangiocarcinoma for 3 1/2 years. In my experience, fevers indicate cholangitis, and cholangitis can cause or be caused by the stents blocking. Sometimes I take antibiotics right away when I see and feel the symptoms coming on (fever, dark urine) and sometimes the antibiotics work. Sometimes they don’t, and I need a stent replacement ASAP. Please don’t wait to see if your dad gets sicker. Run, don’t walk to the doctor and hospital right away for treatment. When I wait, I get really sick and am in the hosptial for a week at a time. You have to nip the infection in the bud, so to speak.
Lately I have noticed symptoms of cholangitis coming on two or three days after chemo. I think it is because my blood counts are low and I can’t fight the burbling infection without the help of antibiotics. I am going to speak with my oncologist about this on Monday.
lisaSpectatorI am so sorry for your loss, codergirl. Sincere condolences go out to you and your family.
lisaSpectatorI am so sorry to hear the news that we’ve been dreading. Kris has been on my thoughts so much. Her brave spirit, her great love for Hans and her family, have been so inspirational to me. Rest in peace dear Kris. And may your family experience confort and consolation at this time of grief.
January 5, 2011 at 1:24 am in reply to: CC is just sitting there, now what? how slow is slow? #46176lisaSpectatorI don’t know how slow is slow, but i have had cc for 3 1/2 years. I have had lots of different chemo treatments plus radiation. I am also exhausted at the end of the day and no longer have the energy to work. As the cancer advances it seems to steal more and more of my energy.
lisaSpectatorI have had lung mets for a couple of years and they haven’t bothered me yet, aside from shortness of breath.
lisaSpectatorDear Beth, it is amazing to me what Dave has gone through in his fight. He is a very brave man. My prayers as always are with you and Maycie and Dave in this ordeal. It must be so hard to be apart from him.
When you say Cape do you mean Cape Girardeau? Are you in St Louis or in Cape? I’m not familiar with that area.
lisaSpectatorA few months ago I read a book by Marcus Luttrell called “Lone Survivor”. He is the lone survivor of a four-man team that was found by the Taliban in Afghanistan, deep in enemy territory. Three of his men died in front of him, and he made it out alive only by crawling, wounded, 7 miles through mountainous terrain. A generous villager found him and tended to his wounds putting his own life and the lives of his family at risk from the Taliban. When Luttrell was finally rescued, and he was home safely, he decided to devote the rest of his life to help veterans and their families readjust to life at home. Some of these men carry physical wounds, and some are mentally wounded. Luttrell’s Lone Survivor Foundation is dedicated to these men and women to help them in what ever they need.
Luttrell’s motto is “Never Quit”. When I think of the brave men and women voluntarily putting themselves in harm’s way to protect us and our freedoms, I think cancer is a small thing in comparison. Never Quit fighting, even if it looks like everything is hopeless.
And last but not least, pray, pray, pray!
lisaSpectatorBeth, all I can offer you is my prayers. I am so sorry you and Dave and your daughter have to go through this.
lisaSpectatorThere are treatment centers but I don’t personally know of any that have had any particular success. Its a terrible disease. I’ve been fighting it for over three years now.
lisaSpectatorKathy, you’re doing much better than I am with the stents. Congratulations!
lisaSpectatorIn my personal opinion only – I think it is best to stay on a low dose anti-biotics long term. It reminds me of when the Teddy’s nurses were afraid to give him Tylenol because it might affect his liver. Please!
I think doctors can get a little scared of the “super bug” or drug resistent infection. But what we are trying to do is just stay healthy and get the routine infections under control. I’ve just gone through a bout of that this past week. “Doom and gloom syndrome” – very apt description of what it feels like to be slowly and unknowningly coming down with cholangitis. Its hard for me to spot the symptoms and my kids don’t really notice. We’ve really got to stay on top of things with this disease.
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