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Viewing 15 posts - 1 through 15 (of 671 total)
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  • in reply to: Saying good by – but not really #95330
    lisacraine
    Participant

    IMarion, I wanted to tell you how sorry I am that you are dealing with cancer. You were the first person who reached out to me on the board and offered me so much love and comfort. You are a true blessing to so many and I know how much I appreciate your kindness and ability to navigate Cholangiocarcinoma for us patients. You will be in my daily prayers.

    in reply to: Hello From Texas #92832
    lisacraine
    Participant

    Welcome Beth

    Everyone has given such good advise already. MDA is topnotch and so is Dr. Javle at MDA. I was diagnosed stage IV ICC in 2010 and had surgeries, chemos and radiation, a multidisciplinary team is crucial. Sending prayers
    Lisa

    in reply to: Introduction #88950
    lisacraine
    Participant

    Peter,
    Welcome to this wonderful foundation and all the caring supporters!! I don’t have any experience with the treatment you are mentioning but I will be praying for your girlfriend and you as well.
    Lisa

    in reply to: Reccurence this EARLY ? #89744
    lisacraine
    Participant

    Praying this is not a recurrence but if it is there are so many treatment options. I have had five recurrences and we just plug along and consider it a chronic disease.
    Lisa

    in reply to: Happy Day #89643
    lisacraine
    Participant

    You are all so sweet. Thank you for your beautiful posts

    in reply to: Happy Day #89642
    lisacraine
    Participant

    You are all so sweet. Thank you for your beautiful posts

    in reply to: chronic neuropathic pain #87671
    lisacraine
    Participant

    Thank you for sharing Marion
    Hugs
    Lisa

    lisacraine
    Participant

    Thank for sharing Gavin
    Hugs
    Lisa

    in reply to: My One Year Mayo Clinic Report #87223
    lisacraine
    Participant

    Julie, this is wonderful news. Praing for continued blessings.
    Lisa

    in reply to: Hello #87917
    lisacraine
    Participant

    Welcome to this wonderful organization and group of supporters. I am so sorry for the loss of your Mother.
    Peace and hugs
    Lisa

    in reply to: 4.5 years! #86654
    lisacraine
    Participant

    Congrats…this is wonderful
    Hugs
    Lisa

    in reply to: 22 year old son just diagnosed #86403
    lisacraine
    Participant

    I am so sorry you are going through this, as a Mom this has to be so hard. I think the above comments are great. Please know our family will be praying for Taylor, you and your family.
    Hugs
    Lisa

    in reply to: My husband has CCA #86620
    lisacraine
    Participant

    Amy,
    Sorry to read about Matt’s latest development. I had my second resection almost one year to the date from my first one. We are here to support you. Sending prayers
    Lisa

    in reply to: Mom’s story – from disagnosis to surgery #86647
    lisacraine
    Participant

    Dear Callie
    Welcome to this group of wonderful supporters. I am so happy to hear your Mom was a surgical candidate and in good hands. Prayers for continued healing.
    Hugs
    Lisa

    in reply to: New to this group – stage III/IVa ICC #71214
    lisacraine
    Participant

    Welcome Elaine,
    I was diagnosed in 2010 stage IV icc. I always suggest a second or third opinion from a multidisciplinary team at a medical facility that has treated cc before. I have read so many articles about radiation not being effective for cc but I had SBRT three times and the treatment killed four tumors.
    Lisa

Viewing 15 posts - 1 through 15 (of 671 total)