lisacraine

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  • January 2, 2015 at 2:31 am in reply to: abdominal discomfort “tightness” months after liver resection #63044
    lisacraine
    Spectator

    I had a resection in 2010 and again in 2011. I still experience some pain and tightness. My doctor said it is probably scar tissue and nerve damage from surgery.
    Lisa

    January 2, 2015 at 2:28 am in reply to: Feeling down #85839
    lisacraine
    Spectator

    Porter, praying this is nothing!
    Hugs
    Lisa

    January 2, 2015 at 2:24 am in reply to: First holidays without Frank. #86017
    lisacraine
    Spectator

    Praying for you and that your pain will turn to beautiful memories.
    Lisa

    January 2, 2015 at 2:18 am in reply to: Newbie Caretaker Post #86029
    lisacraine
    Spectator

    Welcome to this wonderful group of supportive and informative friends. Your family has been through so much with your Dad and your Mom sounds like an angel. Cholangiocarcinoma is so different in all of us. I was diagnosed in 2010 stage IV icc and I am doing well so never give up Hope.
    Hugs
    Lisa

    January 2, 2015 at 2:14 am in reply to: To give up or not #86039
    lisacraine
    Spectator

    Judy,
    I am so sorry for your pain. I am glad to read that hospice in coming soon, they are so wonderful. Praying for peace and comfort.
    Hugs
    Lisa

    December 11, 2014 at 5:08 am in reply to: My mom’s new journey with cancer #85679
    lisacraine
    Spectator

    Golden Girl,
    Love your new name and he show! Every cancer patient needs an advocate and it sounds like your Mom has a good one. Hope they are giving her something for her swollen legs, it is so uncomfortable.
    Hugs
    Lisa

    December 11, 2014 at 5:03 am in reply to: Should I be this frustrated?????? #85777
    lisacraine
    Spectator

    Duke, I had a love hate relationship with my pump..a stylish bag helped the relationship!
    Cilllie, I second Dukes post. Hang in there.
    Peace
    Lisa

    December 11, 2014 at 4:38 am in reply to: Survival…Please tell us your latest milestone #64754
    lisacraine
    Spectator

    Love this news and your family!!!!
    Lisa

    December 11, 2014 at 4:37 am in reply to: Feeling down #85829
    lisacraine
    Spectator

    Porter,
    Please call me if you want to talk. I think Duke has outlined a great plan. I know when I had new tumors after liver resections we used SBRT successfully, maybe ask about this type of radiation.
    Hugs
    Lisa

    December 5, 2014 at 3:12 pm in reply to: New to Discussion Boards #85726
    lisacraine
    Spectator

    Bra,
    Welcome to this wonderful group of caring friends. There is so much good information and support here. I am glad to read you are tolerating chemo well and also had the genomic testing done. I will be praying for you.
    Hugs
    Lisa

    December 5, 2014 at 3:09 pm in reply to: 5 year mark…and still going! :) #85635
    lisacraine
    Spectator

    Melinda
    You are an Inspiration and give so much hope to all of us. Thank you for sharing your journey and being a trailblazer ! May God continue to bless you.
    Love,
    Lisa

    December 5, 2014 at 3:06 pm in reply to: 33 yr old with Stage IV intrahepatic CC – became surigical candidate #85798
    lisacraine
    Spectator

    Christopher,
    Congrats on marriage and twins, I bet your household is busy! You have a great attitude and I will be praying you can have a resection. I was diagnosed stage IV in 2010 and have had two resections. Sending hugs to Canada.
    Lisa

    December 5, 2014 at 3:00 pm in reply to: Prognosis not good #85794
    lisacraine
    Spectator

    Sammi,
    I agree with your daughter, celebrate early . The experts on this board are right, we don’t have an expiration date so live and love. I will be praying for your Dad and family.
    Lisa

    December 5, 2014 at 2:57 pm in reply to: narrowing of scar tissue at new bile duct connection #85783
    lisacraine
    Spectator

    Derin,
    Sorry you have been battling infection but I love reading no recurrence. Praying for better times for you. happy Holidays.
    Hugs
    Lisa

    December 5, 2014 at 2:53 pm in reply to: New scan shows Gem/Cis not working, need new recommendation #85811
    lisacraine
    Spectator

    Rod,
    What about SBRT? my team has successfully killed four tumors with this type of radiation. Have you read about Melinda Bachinnis clinical trial at NIH, she is doing really well. Sending hugs and prayers.
    Lisa

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