liverma88
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Julie-
Great News for you and your family. Thank you for sharing and being a strong support member for the team. I know you feel like you just won at the Mega Millions lottery. I was at Mayo on the 15th. My cancer is same. Did not spread, the Chemo worked for me. I go back in July. I just had the lottery feeling. Stay strong and kind !!!
Judy
Congrats!!!
Hope to hear more good news. Believe in miracles, they do happen daily!
My thoughts and prayers are with you and your family.Judy
Based on my experiences which was in April 2007, it took the Surgeon, 4 1/2 hours.
It went well I was hospitalized for 4 day, Everything well as expected till one week later I had a incision which opened and leaked bile. Got an infection and was back into the hospital for 1 week. Everybody is different and heals differently you will hear so expect nothing but good. It could be faster or longer , ask the Surgeon and his/her what they expect and base it on their judgement.Hoping for the Best for you. More importantly no complications and great results. My FIRST question to all Surgeon is ” How many times have they operated this surgery on their fellow surgeon?” If they can state and identify the actual number, then you have a Great Surgeon !!! I want the BEST, not the runner up. If their peers trust,so can you. it give me peace of mind.
Judy
How are you doing now? I have the interhepatic CCA as well, at the moment. Is everything okay and meeting their and your expectations now? Would love to know. Are you cancer free now ? I hope you really are. I did have a re-section done 7 years ago. However at that time there was NO cancer. Are you still going to Mayo? I stared with Mayo last August 2014. Would like to speak with you, if you are up to it, my email is Iiverma88@gmail.com, I will call you with your permission.
Who and how did they determine it was Interhepatic CCA ?Judy
Brenda
Thank you for building a new bridge for me. I have hope and unanswered questions. With this new extended family, I know miracles will happen. Glad to heard your Kenny is doing better. We have to keep everyone spirits strong and real! Hugs to Kenny and your family.
Judy
Sorry to hear about your diagnosis- I have the Intrahepatic Cholangiocarcinoma also.
Wishing you only the best!!! I am 52, and have been going to Mayo since Aug 2014.
I encourage you to get an second opinion. Only you will have your peace of mind then. I’m from the Chicagoland area, and have been traveling there almost monthly. Was listed on the transplant list. They are trying to manage the Cancer now. Just did TACE- i do not know the results yet. I was advised to seek a living donor. A car drive away to get an second opinion is worth your time, please consider it.In my thoughts and prayers.
Thank you Cathy for speaking to me . Your wisdom and passion is well received. I have hope, however you just opened the window higher.
Another angel in my heart.Judy
How can I speak with you privately ? Would appreciate your wisdom on this matter .
Thank you for opening this door for me .
I am on the transplant list for a liver with a low MELD score since October of 2014. I have not been notify from UNOS with a phone call or mail. Apparently, I’m in a Black hole in their database. Sad to think this is their protocol. I have no documentation from UNOS, 6 months later. I have the resources to read the daily updates from their website, which I check almost daily. We should have a “Higher Expectations” for this organization.
I believe they could be more PRO-Active with this major challenge newbie’s encounter when becoming part of UNOS listing program. This is a reason for the patient’s to become more knowledgeable with their own medical destiny. It’s the the patient who agrees and disagrees with their medical resources available to them. I hope this changes for the future of our transplant friends and family. I not venting, I only looking for more Accountability from the Organizations which we expect “Life” changing results.
