lizzycf
Forum Replies Created
-
Posts
-
Dad visited another radiation oncologist and a hepatobiliary surgeon today. Both them diagnosed as radiation enteritis and intestinal adhesion, which is the same as our surgeon. They have admitted Dad to be inpatient in pain branch. It seems will take a long time to cure this radiation side effect. Even, they don’t know whether their plans will work or not.
Also, I am very confused by surgeons and oncologists. Since Dad was diagnosed and received whipple operation, we have received various post surgery treatments advice from different specialists. In general, they are:
1. No need to take post surgery treatment
2. regular intravenous chemo+radiation
3. oral chemo drugs+radiation
4. oral chemo drugs+target drugs+radiation
5. regular intravenous chemo
6. oral chemo drugs
7. radiation onlyAnd, Dad is receiving therapies in China. A lot patients and their families who have the same disease as Dad are a kind of resistant to chemo/radiotherapies. I am just wondering who can tell me which is the right road we should take. Is it correct or incorrect to take these therapies? Hopefully, the positive impact of what we have done is bigger than the side effects.
Hi PCL1029, thanks for your reply. I have just consulted with a surgeon, he didn’t recommend other treatments, but just continue using pain reliever. He thinks the side effect will gradually disappear along with the end of radiotherapy. However, sometimes the pain reliever doesn’t work well on my Dad. And the analgesic has some influences on liver function. It has been almost one month in hospital, but no alleviation of the pain. Any suggestion about the pain management?
Lainy,
Thanks for your advice. We have been working with a couple of oncologists through this time. Dad has been given some intravenous medication daily. Just no effect so far. I am going to visit another oncologist and our surgeon for alternative opinions. Hope to get some effective plans.
Lizzy
Hi PCL1029, I translate the pathology by myself. My professional field is in higher education. I feel China has some very good surgeons and physicians. Especially, they have a lot cases and experience.
Hi Gavin, thanks for your encouragement. I think my Dad recovers well so far. His appetite is getting better and has gained a couple of pounds after being discharged home. We will take close surveillance on him and look for other oncologists’ advice. I will update Dad’s conditions.
Hi Lainy, your Teddy is my Dad’s example! We will keep observing and look for advice from other oncologists for next step treatments. Bless us!
Hi PCL1029, thanks very much for your advice. I will carefully read the NCCA guidline. We plan to take blood test monthly and CT/MRI each 3 month.
My dad doesn’t have US insurance, and our insurance couldn’t cover him either. I am afraid no agent will accept him (I am not very familiar with US medical system). I am trying to consulte with a US oncologist, but the Stanford center doesn’t accept my request. Still look for other agencies.
