Lones
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Hi there,
My sister had a Whipple procedure around 2 months ago for stage 2 cholangiocarcinoma – distal I believe. She didn’t eat for at least the first 7 days, had nausea, was fed via a nasogastric tube… but she now seems to be managing really well – no GI symptoms from what she’s said. She’s pretty careful about what she eats though. She was also extremely fit prior to the surgery, and has always had a pretty healthy diet, but I’m not sure how much difference those things make. It really seems to vary, from what I read? I hope things settle down for you soon.
Leonie.
Hi Michael, I’m new to this forum so just reading this – so glad you’re doing well and thanks so much for sharing. It’s a real boost to read some positive stories 🙂
Leonie.
Hi Hannah, thanks so much for sharing this, my sister was recently diagnosed and it’s great to read positive stories. I’m so glad your mum is doing well 🙂
Leonie.
Hi again Jeff, thanks so much for that offer. I’m so pleased to hear that you’re travelling along ok and feeling more positive. My sister seems to be staying positive too, which is great – she’s about to complete her first round of chemo, she’s feeling good, she’s doing lots of bushwalking… I believe she even “tested the waters” with a little run recently! (she previously did trail running).
All the best,Leonie.
Hi Jeff – how are you? I’m very late to your post, have only just joined this forum after my sister was recently diagnosed. I’m too new to offer much but hope you’re doing ok….
Leonie.
Hi Laurie, thankyou so much for your reply. I’m so pleased to hear that you’re well 🙂 Thanks so much also for the info on your treatment, I might suggest my sister ask about the option of radiation as well as the Capecitabine (I confirmed last night – yep, that’s what she’s taking)… or if she lets me go with her to some of these appts I’ll raise it myself.
Thanks also for such positivity, and the ideas about developing a mantra… she and our whole family need this positivity and it was great to feel your strength and conviction. I’ve actually screen-shotted your words and at the right time I’m going to share them with her 🙂
Thanks again so much,
Leonie.
Hi Mary, think I just accidentally messaged you instead of posting a reply here….
Thanks so much for your response. It’s really tricky not being at these appointments to ask questions. I’m moving back home for at least 6 months while she has the chemo, to support her and the kids, so perhaps she’ll let me go along to some of them. In the meantime it’s great to know that her doctors seem to be following the usual course.
Thanks again,
Leonie.
