lopezmonsalve

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  • in reply to: My father diagnosed with Klatskin Tumour #62022
    lopezmonsalve
    Spectator

    Thanks Narindersingh for your words.

    Seven years are a lot of time. I will be the most happy person with this time with my father.

    Does your father have stents or external dreinage?

    What special things have you done. Food, some kinds of therapies, tell me more about your personal experience.

    in reply to: My father diagnosed with Klatskin Tumour #62019
    lopezmonsalve
    Spectator

    It is the same doctor.
    I mean doctor thinks that Radiation and Chemo is only for paliative effects. So because my father doesn’t have pain they are not necessary at the moment.

    The biopsy was BACAF (Biopsia Aspirativa con Aguja Fina). I mean it is FNAB in English. I have read that this exam is specific in only the 30% of the cases.

    It seems like there are not much to do in this case. Also my father doesn’t want to try with agressive treatments as chemo. Also because after the dreinage he is feeling good.

    I have lost all my live with this terrible illness, and all the opinions, readings, papers and web pages drive to the same: Only paliative cares can be done, and decrease the pain for the patient. What unfortunately diagnosis.

    Do you now about one person who has long term survival after this diagnosis whitout surgery? I have not found any.

    in reply to: My father diagnosed with Klatskin Tumour #62017
    lopezmonsalve
    Spectator

    Regards

    Yesterday we had the appointment with the hepatologist.

    He said that because the biopsy result was negative and the Ca 19-9 it low (13.9), he is not absolutely sure that it is a cancer. However he don’t know a differente illness whit this symptoms and exams results.

    His opinion is that because my father is ok after the external drainage, and is not losing weight he recommended go to home with good cares, good food and a exercise programm, and come back to control after two months. In this control he will do new exams: CAT an Magnetic Resonance and new blood tests.

    What do you think about that?

    Additionaly we are going to visit a different specialist today, maybe an expert in Hypertermia treatment.

    It is difficult to know what to do. Any opinion is apreciated.

    Thanks.

    in reply to: Scan after xeloda show progression of the disease !!! #62155
    lopezmonsalve
    Spectator

    Mark i am in a similar situation with my dad. I am also distressed. Try to stay strong and to give him all the care and love you can.

    in reply to: My father diagnosed with Klatskin Tumour #62013
    lopezmonsalve
    Spectator

    We were with the best hepatobiliary surgeons in Colombia, and they said that surgery it is not possible.
    It is a very devastating diagnosis.

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