lost_soul84
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All my tests come back showing nothing. The ct scan showed very slight increasing but they are calling it stable and changing my chemo to taxol. I never heard of taxol for bile duct cancer. Apparently I’m gonna lose my eyebrows.
I’ve just been so depressed so I had to take anti depressants. They work but wear off in the night and its so painfull I have to bring my pills everywhere. Sometimes I don’t even get out of bed. We did a endoscopy so I’m waiting for results. But I know most of it is probably the cancer itself and not much can be done sometimes. Just have to get used to it I guess. We will see what the results say.Thank you so much for your kind comments and suggestions! I wish I knew if the sickness was coming from chemo or the cancer itself! Hoping my next scan goes okay. *Hugs*
Thanks ill research it. I have a stent so I’m not sure if I will be able to get it done. They are even scared of changing my stent because of all the tumors. So far the blood work shows its been okay. At least the back pain went away. Well it comes at night sometimes. Every time I try to go to the hospital when I’m in pain crying they just give me pain killers and send me home. But those wear off eventually. I always ask to go when I’m that bad but my parents know they just send me home. Heating pads r my best friend right now. And my bed lol
Thanks for all your help its good to have people who talk to who understand, it feels like everybody just feels sorry n u don’t wanna worry them. Or just don’t care and only care about their life problems.
Thanks I’m trying to in the beginning I was so scared to throw up and the dry heaving but hopefully the pills start kicking in. Trying to get some ensure or glycerine but all the sure sometimes bothers my other stomach problems. Jello seems to be ok when I’m in the mood. They told me to try ice lol lies too but I’m worried about the sugar. Don’t wanna worry about stool problems too. Lol those just come and go
Well my friend took it in fashion so she can teach me charm bracelets and pearls if I’m well enough! Yes they are good at trying to help I guess there’s only so many pills that could actually work. And I guess it takes time too.ditto on the small meals I eat out of the littlest bowls. Sometimes I take one whiff and I’m like no thanks lol. Makes u appreciate the times u actually can eat.
I go to symptoms management and they are good they just keep giving me more or different pills and then pills for side effects of the other pills i feel like a junkie! Sometimes I get a couple of hours a day where I get out of bed I actually so I have to force myself to get out and eat something before it comes back. Then I get scared its gonna come back! Of course it doesn’t help being allergic to 90 percent of foods lol. Such a struggle. I’m trying to learn how to make jewelry I hope it goes okay.
seems easier than knitting. I only know like one stitch lol. The rest come too loose!Thanks all my names Christine btw
. Some of the symptoms died down with my week off. Pam I use bag balm for the hands and feet its a bit greasy and smelly but it helps and for nausea and reflux I notice if I eat really healthy and don’t cheat that it helps a lot sometimes even just soup. Also when I have the energy I try to do a little bit on the treadmill or exercise at a low pace it really helps with digestion. Although sometimes we just feel like being in bed all day! I try to fight it when I can.They prescribed me a mouth wash. I hope it works cause half my face on the inside feels swollen! If it doesn’t work I will try that one thank you
Oh the over the counter is only for the yeast infection. All the other symptoms I have prescribed stuff. some work and some only just help but It could always be worse. I have another ct scan tomorrow so I hope it’s good cause I’m tired of switching chemo! And thanks for the well wishes hope all is good!
Thanks For your answers i called and they said just to take pain killers until my appointment on the 18th it could be from the xeloda next week is my week off from the cycle so she said it should go away I hope so
I just came out of the hospital 10 days ago they said the fever was from an infection and gave me the antibiotics I only finished me yesterday morning at 8 so they might still be in me I don’t have the fever anymore tho. They did all the scans and said they didn’t know where the infection was.
yes the clinical trial is phase 1b i dont know the number my parents have the paper i just hope it works i don`t mind all the side effects as long as it works the most frustrating part is being on it waiting all that time and finding out its not working
Was just curious if it worked for others but i guess everyone is different and won`t know untill the results come. I start on feb 9th! Is it true that after taking so much chemo all the time you get sick just from the chemo killing all the cells
