louie140

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  • in reply to: Hilar Cholangiocarcinoma #81726
    louie140
    Spectator

    Ruali –

    I am so truly sorry to hear of your mothers and brothers passing. It is heartbreaking to hear that this disease took her from you. It is however, wonderful to hear how your family was around her and seemed very protective of her.

    My husband and I just started our journey with CC and we pray everyday that his surgery will cure him of this disease.

    My thoughts and prayers go out to you and your families loss.

    in reply to: My Introduction #80300
    louie140
    Spectator

    Matt –

    What a journey you have been on. Thank you for responding to you entry about my husband. In reading your entries it has helped me better understand what my husband and myself will be going through in the near future. They have just moved up his Portal Vein Embolism to take place on Monday, March 30th. We were told they will be going through his jugular vein due to the location of the tumor. I’ve read that this is a very tricky procedure. Did you have to have this procedure done prior to your resection? They said my husband has to have it done because they will need to take 78% of his liver in order to get a negative margin. Does anyone know of any side effects from the PVE?

    I will continue to follow your entries and recovery. Thank you for sharing and my prayers go out to you and your family.

    Liz

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