Forum Replies Created
November 2, 2022 at 12:51 pm in reply to: Secret Cancer #102104
Thank you Lynn for sharing your experience. Everyone copes differently with a cancer diagnosis, and I am glad that you shared yours and your family’s experience.
I am not sure if you have joined the caregiver support group, or if your husband has joined the patient support group? They are both groups that allow for sharing and sometimes others in the group have good ideas, especially as you last mentioned that your husband has an ongoing cough.
I am putting the link for the support groups here in case you are interested: https://cholangiocarcinoma.org/virtual-support-groups/
You can also find it on the calendar of the CCF website.
Sending you and your family positive thoughts during this journey.
LourdesMay 11, 2017 at 11:09 pm in reply to: The Future #94920
Just another message to you to echoing everyone’s words. Take your time and remember that you are allowed to be sad/mad/indifferent… Having all those feelings of nervousness is completely normal. I hope you find some peace when you go back to work and when at home. I hope those beautiful memories of your mother give you comfort and help you along this new journey in life.
Sending you many positive thoughts and prayers,
LourdesMay 1, 2017 at 9:42 pm in reply to: Allergy to Adhesives…..in need of bandaging idea for port #94651
Your post reminded me of some of the patients I see where I work, and the RNs will use Hypafix tape (which is the cloth tape)…although you may have already tried this.
I did a search for Hypafix alternatives and came across this site: http://oley.org/?page=tapeforsensitiveskin
Not sure if it will be helpful or not?
Wishing you all the best,
LourdesApril 27, 2017 at 10:40 pm in reply to: Excess Saliva — help please #94703
Just as a follow up/clarification, Carmen also says:
“Efectivamente esta acumulando liquido que después escupe, el color es blanco transparente, no tiene síntomas solo la molestia, si esta consumiendo alimentos, todo sancochado y natural.”
He is acumulating liquid that he spits out after. It is transparent in color. He doesn’t have any symptoms, just discomfort. He is eating food, everything natural and boiled.
Thanks Lainy, I will pass that along to her.
LourdesApril 10, 2017 at 9:17 pm in reply to: Eating Well During and After Your Cancer Treatment #91286
I was searching for more of this information in Spanish language, and unfortunately could not find this direct link translated.
However, I did find this page from the American Cancer Society in Spanish, which hopefully is helpful.
Estaba buscando el link sobre información en español sobre la nutrición durante tratamiento, pero desafortunadamente no lo encontré. Si encontré esta pagina del la Sociedad Americana del Cancer que habla sobre la nutrición, y esta traducida en español para los que desean esta información en español.
https://www.cancer.org/es/tratamiento/supervivencia-durante-y-despues-del-tratamiento/bienestar-durante-el-tratamiento/nutricion/nutricion-durante-el-tratamiento.htmlApril 10, 2017 at 9:06 pm in reply to: Good news for Vets and more #94533
Thank you for sharing this!March 21, 2017 at 10:57 pm in reply to: Vietnam Veterans #89362
Just providing a link to an article that was published on veteran’s day of last year in order to bring further awareness on where this link to Vietnam veterans is today: http://bigstory.ap.org/article/2475c351831b47a397830dcc85c10c6f/still-fighting-vietnam-vets-seek-help-rare-cancer
You can absolutely find more information through the above facebook link connecting to Anne Petitti.March 21, 2017 at 10:50 pm in reply to: Family Caregivers in Cancer #94472
Thanks so much for posting this! The link is definitely a wealth of key points, that address so many aspects of being a caregiver, and the sub-roles or within the larger Caregiver role.
As I was reading this, I was mentally doing a checklist of all the things I remember doing, and then again what my mother did as her role as well. What just stuck in my mind was the section on the role of Communicator, and how it’s important to communicate with the medical team, but again how cultural differences may impact the way information may actually be communicated.
It made me remember when we had our first palliative team meeting, and my dad, although given pain medications where he wasn’t fully awake, was able to look at me when he noticed I was getting annoyed with the team of individuals, and shook his head to tell me not to argue. I know that part of this response was the way of thinking, that if you don’t respect them (the medical team), he wouldn’t get the treatment that was necessary, or would be treated in a less than positive way. I think just this piece is so cultural as sometimes in certain cultures we see the medical team as the utmost source of information and knowledge. I think it’s so important to remember as caregivers, that we too have so much knowledge about our loved ones, and we have put so much effort into staying up to date on the most recent research, that we too have a lot of knowledge about the disease.
Sorry, off my soap box now, it’s just the point to stuck with me the most while I read.
I do hope others read and discuss further as in a way, I truly do believe, once a caregiver, always a caregiver. Our perspectives change, for the better, in my opinion.August 21, 2016 at 8:37 pm in reply to: Father recently diagnosed-what next? #92853
I usually am not on the boards but happened to come across your post and it struck a cord in me. First I want to agree with what others have said, you will be inundated with information. I want to highly suggest you use a tape recorder, or digital recorder when you go to the doctor appointments. That also may help your dad process all the information and make the decision that is right for him.
As a caregiver you will want to do all you can for your dad. Remember to try to take time for you to process, and breathe.
Sending you many positive thoughts for this journey.
LourdesSeptember 17, 2014 at 10:35 pm in reply to: Please lend a hand by accepting a task #83614
I just came across this and thought that I would love to volunteer in some way, but I just don’t know in what capacity. Please keep me in mind if you need help with things.
~ LourdesFebruary 10, 2014 at 1:40 am in reply to: Another beautiful poem…. #79021
I just read your poem and it was really beautiful. I haven’t been around the site for a while and have been missing my dad tremendously recently. Wishing everyone much peace and love in this month of awareness.
~ LourdesMarch 15, 2013 at 2:08 am in reply to: Baylor College of Medicine’s Center for Globalization announces newest #69459
Thank you so much for sharing this. I save all this info…it’s makes me glad when there is research going on especially related to liver flukes (my dad was in Vietnam).
And being from CA with all the things you hear about fish…I pointed it out once at a store when some fish sold there was from Japan after earthquake/tsunami…they said it was ok but shortly after never seen again ~February 25, 2013 at 2:34 am in reply to: Unanswered questions #69104
First of all, I am sending out positive thoughts to you and your mom. In case you wanted a little more information on what Marion had mentioned (chemoembolization) here is a link to a post I had placed a while back: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=48449#p48449
I hope your mom has a wonderful time in Hawaii
Thank your responses…I will email Laurie and see if I can obtain any…I will also send a little more info about the event.
It was nice to stop in again and read some of the updates.
LourdesApril 28, 2012 at 1:51 am in reply to: Farewell Dad #60301
Thank you all for your kind words. I have passed along all of your messages and each one has truly touched our hearts, and is helping us during this time.
If any of you are interested in service information and online tribute about my father this is the information: http://hosting-19539.tributes.com/show/Hugo-Antonio-Rocha-93703039