lourdesalicia

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Viewing 15 posts - 1 through 15 (of 37 total)
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  • in reply to: Secret Cancer #102104
    lourdesalicia
    Spectator

    Thank you Lynn for sharing your experience. Everyone copes differently with a cancer diagnosis, and I am glad that you shared yours and your family’s experience.

    I am not sure if you have joined the caregiver support group, or if your husband has joined the patient support group? They are both groups that allow for sharing and sometimes others in the group have good ideas, especially as you last mentioned that your husband has an ongoing cough.

    I am putting the link for the support groups here in case you are interested: https://cholangiocarcinoma.org/virtual-support-groups/

    You can also find it on the calendar of the CCF website.

    Sending you and your family positive thoughts during this journey.

    Lourdes

    in reply to: The Future #94920
    lourdesalicia
    Spectator

    Hi Tiah,

    Just another message to you to echoing everyone’s words. Take your time and remember that you are allowed to be sad/mad/indifferent… Having all those feelings of nervousness is completely normal. I hope you find some peace when you go back to work and when at home. I hope those beautiful memories of your mother give you comfort and help you along this new journey in life.

    Sending you many positive thoughts and prayers,

    Lourdes

    lourdesalicia
    Spectator

    Hi Julie,
    Your post reminded me of some of the patients I see where I work, and the RNs will use Hypafix tape (which is the cloth tape)…although you may have already tried this.

    I did a search for Hypafix alternatives and came across this site: http://oley.org/?page=tapeforsensitiveskin

    Not sure if it will be helpful or not?

    Wishing you all the best,
    Lourdes

    in reply to: Excess Saliva — help please #94703
    lourdesalicia
    Spectator

    Just as a follow up/clarification, Carmen also says:

    “Efectivamente esta acumulando liquido que después escupe, el color es blanco transparente, no tiene síntomas solo la molestia, si esta consumiendo alimentos, todo sancochado y natural.”

    He is acumulating liquid that he spits out after. It is transparent in color. He doesn’t have any symptoms, just discomfort. He is eating food, everything natural and boiled.

    Thanks Lainy, I will pass that along to her.

    Lourdes

    in reply to: Eating Well During and After Your Cancer Treatment #91286
    lourdesalicia
    Spectator

    Hi all,
    I was searching for more of this information in Spanish language, and unfortunately could not find this direct link translated.

    However, I did find this page from the American Cancer Society in Spanish, which hopefully is helpful.

    ____

    Estaba buscando el link sobre información en español sobre la nutrición durante tratamiento, pero desafortunadamente no lo encontré. Si encontré esta pagina del la Sociedad Americana del Cancer que habla sobre la nutrición, y esta traducida en español para los que desean esta información en español.

    https://www.cancer.org/es/tratamiento/supervivencia-durante-y-despues-del-tratamiento/bienestar-durante-el-tratamiento/nutricion/nutricion-durante-el-tratamiento.html

    in reply to: Good news for Vets and more #94533
    lourdesalicia
    Spectator

    Thank you for sharing this!

    in reply to: Vietnam Veterans #89362
    lourdesalicia
    Spectator

    Just providing a link to an article that was published on veteran’s day of last year in order to bring further awareness on where this link to Vietnam veterans is today: http://bigstory.ap.org/article/2475c351831b47a397830dcc85c10c6f/still-fighting-vietnam-vets-seek-help-rare-cancer

    You can absolutely find more information through the above facebook link connecting to Anne Petitti.

    in reply to: Family Caregivers in Cancer #94472
    lourdesalicia
    Spectator

    Marion,
    Thanks so much for posting this! The link is definitely a wealth of key points, that address so many aspects of being a caregiver, and the sub-roles or within the larger Caregiver role.

    As I was reading this, I was mentally doing a checklist of all the things I remember doing, and then again what my mother did as her role as well. What just stuck in my mind was the section on the role of Communicator, and how it’s important to communicate with the medical team, but again how cultural differences may impact the way information may actually be communicated.

    It made me remember when we had our first palliative team meeting, and my dad, although given pain medications where he wasn’t fully awake, was able to look at me when he noticed I was getting annoyed with the team of individuals, and shook his head to tell me not to argue. I know that part of this response was the way of thinking, that if you don’t respect them (the medical team), he wouldn’t get the treatment that was necessary, or would be treated in a less than positive way. I think just this piece is so cultural as sometimes in certain cultures we see the medical team as the utmost source of information and knowledge. I think it’s so important to remember as caregivers, that we too have so much knowledge about our loved ones, and we have put so much effort into staying up to date on the most recent research, that we too have a lot of knowledge about the disease.

    Sorry, off my soap box now, it’s just the point to stuck with me the most while I read.

    I do hope others read and discuss further as in a way, I truly do believe, once a caregiver, always a caregiver. Our perspectives change, for the better, in my opinion.

    in reply to: Father recently diagnosed-what next? #92853
    lourdesalicia
    Spectator

    Hi Vallerina,
    I usually am not on the boards but happened to come across your post and it struck a cord in me. First I want to agree with what others have said, you will be inundated with information. I want to highly suggest you use a tape recorder, or digital recorder when you go to the doctor appointments. That also may help your dad process all the information and make the decision that is right for him.

    As a caregiver you will want to do all you can for your dad. Remember to try to take time for you to process, and breathe.

    Sending you many positive thoughts for this journey.

    Lourdes

    in reply to: Please lend a hand by accepting a task #83614
    lourdesalicia
    Spectator

    Hello Marion,
    I just came across this and thought that I would love to volunteer in some way, but I just don’t know in what capacity. Please keep me in mind if you need help with things.

    ~ Lourdes

    in reply to: Another beautiful poem…. #79021
    lourdesalicia
    Spectator

    I just read your poem and it was really beautiful. I haven’t been around the site for a while and have been missing my dad tremendously recently. Wishing everyone much peace and love in this month of awareness.

    ~ Lourdes

    lourdesalicia
    Spectator

    Thank you so much for sharing this. I save all this info…it’s makes me glad when there is research going on especially related to liver flukes (my dad was in Vietnam).

    And being from CA with all the things you hear about fish…I pointed it out once at a store when some fish sold there was from Japan after earthquake/tsunami…they said it was ok but shortly after never seen again ~

    in reply to: Unanswered questions #69104
    lourdesalicia
    Spectator

    Hello Chelsea,
    First of all, I am sending out positive thoughts to you and your mom. In case you wanted a little more information on what Marion had mentioned (chemoembolization) here is a link to a post I had placed a while back: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=48449#p48449

    I hope your mom has a wonderful time in Hawaii :)

    ~ Lourdes

    in reply to: Brochures #66529
    lourdesalicia
    Spectator

    Thank your responses…I will email Laurie and see if I can obtain any…I will also send a little more info about the event.

    It was nice to stop in again and read some of the updates.

    Take care,
    Lourdes

    in reply to: Farewell Dad #60301
    lourdesalicia
    Spectator

    Thank you all for your kind words. I have passed along all of your messages and each one has truly touched our hearts, and is helping us during this time.

    If any of you are interested in service information and online tribute about my father this is the information: http://hosting-19539.tributes.com/show/Hugo-Antonio-Rocha-93703039

Viewing 15 posts - 1 through 15 (of 37 total)