lourdesalicia
Forum Replies Created
-
Posts
-
Hi UCLA,
My dad was also recently diagnosed and I have found this site and all those who respond to be extremely helpful. Aside from what others have posted, I wanted to ask if your dad is being seen in Southern California. My dad is with Kaiser, and we went to UCLA for a 2nd opinion, which was basically the same as Kaiser’s treatment plan.I’m not a big believer in survival rate information (my dad is diagnosed with Stage 4 but no obvious symptoms), as I think anything is possible and you never know what miracles can happen. Please feel free to email me directly if you have any questions about the 2nd opinion at UCLA or if your dad is with Kaiser, I can let you know more about our experience so far.
Keep positive, and focus on those things you have control of (grades, studying, etc).
Wishing you and your family the best during this journey,
Lourdes
Although not herbs, my sister recently read about papaya leaves possibly helping with tumors. I came across this article if anyone is interested:
http://www.pdazzler.com/wp-content/pdf/papaya.pdf
my dad was recently diagnosed and has started to drink some papaya leaf tea we found at a local natural foods store. can possibly be helpful.
wishing everyone all the best,
LourdesThanks for your your husband’s experience Peony. We are expecting both meds on the same day as well, but we were not told of going in the following day. The schedule for my dad is expected to be 2 weeks on, one week off ~ and now the plan is also to do chemo embolization (were informed this past Friday of another treatment option) after the first round of systemic chemo.
My thoughts and prayers are with you and your husband during your journey,
Lourdes
Thank you everyone…I will keep you posted on chemo stuff and I’m sure I will be back with more questions.
Congratulations! It is wonderful to hear good news and I wish you so many years of more good news! Hope that my dad will one day join you in the good news section!
Lourdes
I know that this post is from a while back but I thought if anyone is still trying to keep track of information and connection between CC and Vietnam Vets I’d share that my dad, who served in Vietnam in 1967-68, has recently been diagnosed with CC. No known risk factors, he’s been generally healthy up until this came up so he keeps asking himself where did it come from. (and all we get from doctors is “bad luck” ~ thanks a lot!).
No plans to send anything to the VA but hoping that anyone else trying to get responses from the VA is successful.
~Lourdes
Thank you so much for all of your support. My dad was initially told he had adenocarcinoma, then interhepatic carcinoma, and now they are saying cholangiocarcinoma. He has a primary tumor in his liver, and had actually gone to the hospital on Friday for liver resection surgery, but we were told that it was inoperable, and they shaved a nodule that was on his liver and this was when the surgeon said it was cholangiocarcinoma. They also said the lymph nodes behind the liver were affected.
I have been reading a lot, trying to find out how to change his diet to more vegetables since I keep reading that cancer cells don’t like oxygen and veggies are big on oxygen. His 1st medical oncology appointment is on Monday and I scheduled a 2nd opinion at UCLA Hematology and Oncology Center since I found on this site that it’s specializes in CC. I had also called City of Hope, but wasn’t sure if they specialize in this.
He’s actually in good health and the only symptoms are the chills. Most recently he has been sweating a lot in his sleep but we thought this may be from the pain medications he was on right after surgery.
Do you have any suggestions on questions for the oncologist? What to ask at the 2nd opinion?
My mom and I sat in for the webinar on chemo for CC so we are trying to gather as much information as possible.
Again I thank you for every bit of advice. I will check back often and keep positive.
