lovemom
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Alison,
I’m not sure if you are still on this site, but i had to post when I saw yours. We are in very similar situations- my mother was diagnosed in May of 2007 at the age of 61- they gave her a prognosis of 1 year. At that time i had a 2 month old daughter- first grandchild and loved by my mom more than words can express. My daughter is now 10 months old, and my mom isn’t doing very well. she is now on Xeloda, but her bily rubin is high, and her creatine levels arent great. this has been the most overwhelming 8 months of my life- filled with utter joy and such pain at the same time. I sometimes wonder how i have the energy and mental stamina to take care of my girl, and try to maintain some sanity. My mother is truly my best friend- this diagnosis has cast a total cloud over my whole family.
if you are still on this board, please post and let us know how your mom is doing.
Melissa
my mom was on Gemcitabine and this drug (we think) affected her kindneys. about 4 rounds in, she got up one night to go to the bathroom and was so out of breath she had to go into the hospital. We all are fairly sure it was the Gemcitabine, and her oncologist wanted to start her on Tarveca, but we are all leary because of the terrible affect Gemcitabine had on her- and Gemcitabine was supposed to be the one with less side effects! her other side effects were tiredness, occasionally had a fever, but i dont know that she ever had diarrhea. there were many days that she really DID feel like crap though. i guess everyone is affected by these chemo drugs in a different way.
and youre right to have a tantrum- this really does TRULY suck. it sucks for me as a daughter who is watching her mother suffer from this- i cant imagine how much it must suck for the person going through it.
my thoughts and prayers are with you.
thank you everyone for your kind words- and carol for giving me some feedback regarding your experience with Dr. Kennedy. I am so hoping he is the miracle we are looking for.
this board is great- but its so sad to see how many peoples lives are affected by this damn cancer. i look at my own experience with my mom, and i guess its hard at any age to have a parent come down with a sickness, or to lose them, but it just makes it something different now that im a mother. my family should all be celebrating my daugher- my mothers granddaughter, but instead everyday is filled with the unknown… how will she be feeling today, what kind of research can i find today, will that tumor shrink… its overwhelming and makes me so sad.
As children we all believe our parents are invicibile- they are the strong ones, and now im finding myself having to be the strong one for her, which i know i can be but all i really want to do is crawl up on her lap and hug her like i did when i was a kid. god- i hate this…
thanks again for everyones words- i hope to be posting more on this board.
