lulu07
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Linda-I’am wishing u a very successful meeting with the docs at Mayo on Tuesday-u traveling to see them is a nod to u as u r taking your medical care into your own hands and being your own advocate! Hats off to u! As always anyone who is fighting or helping someone fight this disease is in my thoughts and prayers daily.
I recieved 6 rounds of chemo at Sloan through my veins by the 6th treatment my veins were getting pretty thin, harder and harder for them to stick me. I then had surgery my new oncologist at Bruckner oncology insisted on a double port from day 1. However they would not draw blood from it or andminister dye through it for fear of infection which whould then delay my chemo. I barely know I have it I finished chemo on Aug 18 and will keep the port in and have it flushed once every 4 to 6 weeks. God willing I will never need to use it again and will have it removed after 3 years which my surgeon tells me is a proper waiting period after surgery for recurrence. Jane is correct a port can be implanted at any time during treatment so no hurry to make your decision. I just found it to be easier u can get up and walk around with your chemo hanging from the pole it was easier to socialize, go to the ladies room etc…. Best of luck to u both I will keep u in my thoughts and prayers.
Diane
So glad u found this site and to hear of your successful surgery. I had removal of my right lobe of my liver and resection in Jan 10 then 6 months adjuvant chemo. My surgeon sees me every 3 months right now. My surgeon orders ct of chest and abdomen then I go to his office which is in the hospital and he brings the results right up on the computer and reads them himself. I asked if my oncologist should order next one and he said why would he he can’t read them. I also see my oncologist once a month since I just finished chemo in August but, I will see him after all of my scans. My oncologist of course was involved with all of my chemo. I feel having both of them reviewing my case regularly gives me a sense that I am receiving the best of care. Regarding your back pain if you have a primary dr. perhaps they could order some blood work for you to have liver function tests.
Best of luck to you I will keep u in my thoughts and prayers.Bob
Thank u for your wonderful post. May u have many more clean scans. May I ask what type of CC u were diagnosed with. Extrahepatic-intrahepatic-klastkins tumor? Good news from people like u mean so much to everyone on this site.Judy
This is little known but Mt Sinai in NYC has excellent surgeons for CC and liver transplantation and has seen alot of cases of CC. My surgeon was Dr. Myron Schwartz he is the head of surgical oncology. He operated when Sloan would not. I had 6 months adjuvant chemotherapy after a succesful liver resection where 65% of my liver was removed and then resected. I can not sing the praises of this Dr. or hospital enough.
Nancy
Wonderful news! May they continue for many,many more years. Love this kind of posting and great news.
Randi
It certanily does seem that we r on the same path my tumor markers were never abnormal either! I just finished chemo on the 18th of August I tolerated it very well no problems really just a couple of hot flashes ut oh giving away my age. I was given 5 different chemo meds over a 2 day period I would go home with a pump on Mondays and it would be unhooked on Tuesday when I had my Oxaliplatin. Mondays I was given 3 differents meds. I have a double port so all meds went through there it is better then the veins. I will be seeing my oncologist once a month for the first three months then Ct scan with my surgeon if all is well I will not have to see either of them for 3 months which will be a blessing. I don’t know about u but I’m tired of being stuck for blood every week. Is your surgeon still active in your care? I really need to just sit back and take in all that has happened within the last 10 months but, for right know I’m just loving life.
Take care:
Nancyhaiminh
Just wanted to let you know that I was diagnosed with intrahepatic CC. My tumor markers CA19-9 and CEA were never in the abnormal range. The highest my CA19-9 ever went to was 40. It is now 14 with my CEA at 0.2. These labs are just one of the tools used for diagnosis, for me I keep a closer watch on my liver function labs.
Nancy
Randi,
Terrific news! May u have many,many more clean Ct scans. I was diagnosed with intrahepatic CC in Oct 09 had surgery Jan 10 then 6 months adjuvant chemo. Last Ct scan in July was clean no sign of active disease as my surgeon put it. I will have my next scan in Oct my surgeon wants scans every 3 months for the first year. Best of luck to you and everyone who is battling this disease u are all in my thoughts and prayers daily.
Nancy
Sue- Wonderful, wonderful post. I just had my 6 month Ct scan it was all clear. I had my gallbladder, right lobe of my liver and bile duct resected in January. 6 months of chemo therapy I will finish on August 17. Thank you so much for posting it’s true there are many survivor strories out there and I personally would like to hear some more. Wishing you continued good health.
Nancy
