Hi Jemima
I haven’t been to any of the appts with mum as my stepdad goes with her. The problem is neither of them are asking questions about this condition, either that or they are holding info from me and my siblings so as not to upset us.
I have researched it quite a bit but alot of the info contradicts itself and is quite negative, i then found this site and realised there is actually hope and after reading things on here i am touched and inspired by you all.
Mum has had scans (CT and MRI) lots of blood tests and has got external drains at the moment.
The doctors were gonna let her home today, but they changed their minds and have now decided to transfer her to Royal Surrey.
The doctors have said they will operate in 4 weeks, sorry dont know exact location of tumour. ( I think i’m gonna have to get together with the doctors)
And Yes i am in UK.
I really hope things work out for your mum, how old is she.
Thank you also Lainy and Joolz for welcoming me to the family.
Best wishes for now.
Lulu x