lynn

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    lynn
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    My husband just turned 70 on October 3. We got the diagnosis on October 13 and since then we have been trying to find out about this terrible disease, the prognosis and treatments. Though I’ve been told that Don’s tumor is too large to resect and that a transplant is not an option for him, I can’t help feeling that I should be doing more to find another doctor/team/hospital that would give us a more optimistic prognosis. We have seen three oncologists, a specialist in liver surgery and a very respected oncologist who specializes in cholangiocarcinoma. All have told us that the only thing we can do is manage this disease, probably only for about a year to 18 mos. When I tell family and friends where we are being treated they are horrified that we haven’t gone straight to one of the big name cancer centers, where, they are sure that we will find a miracle cure. This, of course, taps into my own doubts about my ability to find the right doctor and the best team, etc. I want to take him for a second opinion to someplace like Memorial Sloan Kettering, if only to silence everyone. I am I seeing this clearly?

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