mafoster

Thank you so much. I am jotting all of this down to share with my parents. This is going to sound very stupid, but I’m still learning, but how many different chemo cocktails are used for cholangiocarcinoma & how do the oncologists decide which to use? I know, that might be a question they need to ask their oncologist, but I thought I’d throw it out there since so many of you amaze me with all your knowledge on this awful cancer. Thanks

Thank you for your responses. This is still so new & hard to swallow. It’s really happened so fast. Just a little over 2 months ago dad was on the field passing out all star jerseys to the Texas Rangers, playing in golf tournaments & now to see him so weak & pretty much immobile is beyond devastating. He started having pain when the blood clots started & being in & out of the hospital during all of that he started getting weak. Soon thereafter he was diagnosed with this & it seemed he immediately went downhill at a furious pace. He stays in his recliner, but now his back pain is also getting to be too much, so he tried the bed, but that’s not working. I feel so helpless & it’s just so hard. At one point we even tried to get his doctor to prescribe medicinal marijuana, but they refused. We were hoping it would increase his appetite & mood at the same time. I don’t live in the same town as my parents to go to the doctor appointments, but I’m going to come up with questions mom could ask the doctor. They get discouraged because they said she always responds with, “it’s the cancer.” Thank you all again. Your responses are greatly appreciated.