Forum Replies Created
Amazing! Thanks for sharing. You are right, there is hope!
Enjoy! I am so disappointed that I will miss it, but I will be there next year for sure. For this year, however, I will be watching via the internet! Warm regards and safe travels to all,
I am so sorry to hear about your loss. Your words, “find a cure for this nasty cancer” stick with me and can’t be more true. My thoughts are with you and may you find peace in the days and months to come.
On December 19, 2014 I had a successful liver transplant (living liver donor) for intrahepatic cholangio. I was treated and continue my follow up care at Mayo Clinic in Rochester, MN and I can’t say enough about these amazing doctors.
Dr. Gregory Gores – Hepatologist
Dr. Steven Alberts – Oncologist
Dr. Charles Rosen and Dr. Julie Heimbach – Transplant surgeon
I did 6+ months of adjuvant chemotherapy at Johns Hopkins here in Maryland where I live, but followed a Mayo Clinic protocol of gem/cis and really consider my main doctors those on my “team” in Minnesota. I am just over two years cancer free and I truly believe the Mayo Clinic is responsible for this survivorship!
Eleven years a survivor is truly something to celebrate! I am a one year and nine month survivor, but who’s counting? I also had PSC, but that was considered cured also, as I had a liver transplant to remove my intrahepatic cc tumor as that was the only option. I can only hope for you that you continue to feel well and the PSC does not cause a recurrence. I believe attitude and strength is half the battle and you clearly are living a life that is healthy and happy. It is people like you who make it easier for the rest of us to believe we can also make it 11+ years post diagnosis. Thanks!
As a fellow CCA survivor, I applaud you! Your energy and desire to make sure survivorship is known is inspiring and I share your thoughts whole-heartedly. Thanks for your story!