Malepi

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  • in reply to: Chemotherapy resistance – what to do next? #96561
    Malepi
    Participant

    Thank you very much for your help!!

    Fortunately, the Ca 19.9 dropped again so he will continue with GEMOX.

    Here in Portugal the doctors advised 4 weeks without chemotherapy before doing the Y-90 radioembolization but the idea of staying 4 weeks without any treatment doesn’t seem a good option for now for his oncologist.

    The Foundation One showed NRAS and MUTYH mutations. I didn’t see yet the report so I don’t know if there any available treatments for him.

    Thank you again for your support!!

    in reply to: NCI-Molecular Analysis for Therapy Choice (NCI-MATCH) Trial #96189
    Malepi
    Participant

    Dear Mary,

    Many thanks for your comments. Spain is an option we are evaluating. Until then we hope the standard chemo results as much as posible.

    Best regards

    in reply to: NCI-Molecular Analysis for Therapy Choice (NCI-MATCH) Trial #96179
    Malepi
    Participant

    Dear Marion and all,

    My father was diagnosed with Cholangiocarcinoma stage IV in July 2017. He started chemo with gemcitabine/oxaliplatin one month later. We live in Portugal and he is being treated there. There is only a clinical trial for solid tumors including Cholangiocarcinoma and at this time nobody suggested for a genetic test.

    We knew that is posible to do the FoundationOne test with the samples of the biopsy however we were advised that the samples can be lost if we want to do a new genetic test (for example before starting a specific clinical trial) and also that more validation is needed to accept FoundationOne test as routine work-up at the hospital.

    Based on this I would like that someone comment and also if there is a genetic test/genome profile more valid that we should use instead?

    Thanks in advance for all the help given!

    • This reply was modified 1 year, 6 months ago by  Malepi.
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