mamamia

Thanks Lainy.

I will have alook at the site you mentioned.

The docs had offered intense chemo, (4 days as inpatient) for i think, 3 weeks etc. My mum doesn’t wish to go through this as they have said it is incurable, and inoperable. As pain meds go, mum is being so stubborn saying she will tolerate the pain until she needs them. We have all tried speaking to her regarding this, as we know there is meds that wont affect driving etc. (Mum still working etc.)

I am hoping that this is just a minor glitch but i know how scared my poor mum is. She is only 58, its so sad how this horrible disease takes hold of people with so much left to live. Its so cruel.

She is awaiting a phone call from her consultant to revise her treatment. She is nowhere near needing hospice (i hope), but we all just want her out of pain.

Thanks again Lainy

Chelle

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Thanks for your replies.

I do remember speaking to you both previously, you really do have amazing strength.

I am trying very hard for my kids, my mum,dad and brother to keep a positive approach. I don’t want to waste this time feeling sorry for myself, or being glum. My mum has given us all so much strength in the way she has been dealing with things which is great.
Today she is meeting the McMillan nurses to talk over support etc. Seems as though everything is going 100mph. It unbelievable, that only a few months ago we were a normal family.

My kids are aware that mum is unwell, and my oldest who is 10 knows that she has cancer, but we haven’t went into much detail. My mum was given 2 weeks to live before Christmas, which was gut wrenching, we seemed to be living on a knife edge, thankfully she got through and made a really remarkable recovery.

She has a fair bit of constant pain under her ribs, and occassionally into her back.
She feels very tired
Cant eat spicy food as it aggrivates her
Her bowels arent moving as normal as they had been

i suppose this is all to be expected.

Thanks again for all th support you offer here. It is great to be able to vent my feelings outwith family. I hate burdening them, so keep it inside so as not to upset anyone. They are all probably the exact same,

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thanks marions. What needs to be done to make everything conclusive? Which tests etc should be done if any that haven’t already.

So far an:
ultrasound
CT scan
Blood tests
Stent
brushing have been done to give us the diagnosis we have at present.

Thanks for taking time to respond.

Hope you are all well

Chelle

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Jemima,

Yes it definately makes all the difference having time spent when she is feeling good.
She is doing so much trying to get housework done, i feel as though she is maybe doing too much, as i feel she needs to keep her strength for fighting this horrible disease. But always being one to be on the go there is no telling her!!! She does seem to be happy going about normal, and as long as she isn’t having too much pain i need to let her make these decisions. It is just so hard to take it in. Cant believe that only afew weeks ago we expected mum to have gall stones removed and all would be fine after that, how wrong can you be…………………..

Anyway, i am sure you are all going through tough times too, so no point in moaning on and on. We need to be positive, we are much bigger than this XXXXXXX tumour, surely we need to able to attack it as much as it attacks us………..here’s hoping!!!!!!!

Be positive everyone, if only for your own sanity. :rolleyes:

Chelle

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thanks so much for all your kind words. I feel i am keeping it all in to be strong. My dad and brother and so upset, and i feel i am trying to be strong for everyone, especially my mum who has been so strong indeed. Its amazing how she is holding it together.

We had had the most wonderful weekend together. The doctors decided to give my mum a weekend pass, so we all went up to my parents house to spend ‘time’ together. The specialists are having a meeeting on thu, or fri to discuss the approach they will take.

I have heard alot on here about something called whipple? Is this something everyone at some stage can get? Or has it got to be done at a certain stage?

Also, chemo has only been mentioned as a possibility, should they not be giving this regardless to try and give mum every possible chance she has!!!!

My mum is otherwise very fit and healthy, although only 6st13oz.

any insight really appreciated. Hope everyone is ok, you are an amazing bunch!!!

Thanks again

Chelle

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Well apparently the surgeons at thr royal are the best ones around. So hopefully we will not need to look further than them, its all i am clinging onto at the moment. I think i will be nedding every opinion i can, i just dont believe it is happening.

Reading all thes posts here sounded foreign a couple of weeks ago. Never heard of bile duct, stent, etc then it seems that its a language you have spoken forever. It sounded unreal some of the things i have read here, now i am saying that they are happening to my mum.

WHY WHY WHY

Seems to be my favourite thought. I feel numb, sick, angry, scared, shocked. Every emotion has hit me from nowhere when i least expect it. I cant even bring a tear to my eye as i wont be able to stop then if i start.

Why cant they operate? thought you didn’t need pancreas or gallbladder.

Can they not give her insulin if they remove pancreas.

Chemo and radio been mentioned, would this or could this get rid of tumor completely without surgery? can it cure it i mean? Has anyone had an inoperable tumor that has survived, or at least surviving

Thanks for all your thoughts, i am thinking and wishing for you all too

Chelle

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Hi all.

Unfortunately i shouldnt have worried about being in the wrong place here. Mum got scan results on wednesday. There is a tumor between pancreas and gallbladder in the duct.

We now have to wait for a week until the consultant talks to specialist about what to do.

Been told it is inoperable due to position and that it has wrapped round bile duct. They have put stent it to drain off bile. that was yesterday, and today stools are darker and urine lighter, but no improvement on skin/eyes yet.

We have no idea what stage we are at, if we have any chance with chemo or not. My mum will only do chemo if there is good chance, any thought wat stage we are at with your experiences with this horrid disease.

My heart truly goes out to each and every one of you.

Chelle xxxxxxxxxxxxxxx