mandabun

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  • in reply to: My visit to Mayo Clinic, Scottsdale, AZ #26861
    mandabun
    Spectator

    Barbara,
    My husband was diagnosed with ulcertaive cholitis and primary sclerosing cholangitis 19 years ago. He developed the cholangiocarcinoma as a result of the psc. we are on month 8 and trying to find an alternative means of draining bile from his system. We just got back from Mayo in Rochester. They couldn’t put in a stent because of the scarring from the PSC. I am trying to learn more about biliary bypass. Know anything?
    Good talking to u and hope ur feeling well:)

    in reply to: Loving Each Other – One Day At A Time #15575
    mandabun
    Spectator

    Hi Ted. I just read your posts. They were very moving. I hope you and your wife are doing the best you can under these circumstances. My husband is battling cholangiocarcinoma. We need to lower his bilirubin. We just returned from Mayo. Doctors there tried inserting a stent but could not do it. They told us that there was nothing more they could do. I have heard of other procedures called a biliary bypass, which sounds like maybe what your wife had. Could you please tell me about your experiences with this procedure and the name of the doctor who performed it? Thank you for sharing, Ted.

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