margie
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Hi, Jeff; Thanks for your story. It sounds like you have been through a lot. I would never have imagined 9 years of chemo, but its keeping you alive and thats what counts. My understanding is that there is no specific treatment for cc, so that, in my case, it is treated as pancreatic cancer. There doesn’t seem to be much research being done, as there are too few cases. In spite of what you are going through you are living a quality life and doing most of what you want to do. May you keep it up for many, many years and hopefully a cure will be found.
Best Regards,
MargieI’ve never met or talked with anyone with cc until now. Its been 4 years since my surgery. The only difference now is I don’t experience physical hunger (just psychological hunger), and I never regained my former strength and energy, although I get along just fine. Also, I have problems digesting fat, sugar and protein, and must take a pancreatic enzyme with meals. Do any other people have a similar experience? Has anyone had a long-time survival? If so, do you have any problems? I’d love to hear from others.
