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Viewing 15 posts - 1 through 15 (of 141 total)
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  • in reply to: Back from NIH checkup – good news!! #67263
    maria
    Participant

    Melinda, what WONDERFUL news!!
    I´ve been trying to read up on you and get almost breathless… We didn´t do the same treatments even though I´ve done a lot of GemCis as well. I never was resected. BUT apart from that you are one of the few ones I can feel that we have the same disease. I´m even an RN (paramedic, at work right now) just turned 46 diagnosed in April-2010. Still asymptomatic of any signs of cancerous disease (if you don´t look at scans :) That little detail)
    Please contact me if you feel like it!

    hugs
    Maria

    in reply to: Scan results for Lauren #67296
    maria
    Participant

    This is GREAT NEWS!
    Wonderful! Happy for you!
    Maria

    in reply to: CT and PET scan results!!!!! #66793
    maria
    Participant

    Kris, I will never be “cured” either.
    But what does cure mean? Nothing to be seen on scan or living a good life? What’s most important? Maybe we have to aim for living and staying health and skip the clean-scan-part?

    At least I think that this is possible. It’s been possible for me the last 2,5 years.
    At my visit to the doctor the other day (stable disease) you could really start wondering who was sick/healthy… Comparing me, the nurse and my doctor I don’t think anybody would have guessed I was the one with the bad diagnosis.

    What is health, what is disease, what is CANCER? Words trying to describe something, but life is much bigger than that. Much more complicated and not so black and white. Typically humans wanting to put everything in nice little boxes, classified and easy to understand.

    Here’s to us and to a nice day above earth :) ( November in Sweden…. dark, rain, cold…well, let’s give ita try ;) )

    Maria

    in reply to: CT and PET scan results!!!!! #66780
    maria
    Participant

    YES Kris!!!! Happy for you!!
    Maria

    in reply to: Prayers are answered #65295
    maria
    Participant

    I’m SO happy for you, and for all of us! This is so wonderful.
    Maria

    in reply to: Shrinkage!!!! #64244
    maria
    Participant

    Thank you Peggy :) !

    My lifestile includes
    *Physical excersise, a lot and hard
    *Yoga and reiki healing
    *Food: Organic mostly vegetarian, no gluten, no lactose, no sugar
    *Complementary medicin with a lot of diferent herbs
    *A very positive attitude, keeping a “normal life” and not seeing myself as sick.

    Maria

    in reply to: Clear Scans! #64529
    maria
    Participant

    We NEED stories like this! Thank you so much for sharing!
    Another proof that palliative is just a word invented to try to put us in boxes, and we DO NOT belong in boxes!! Life is not black or white.
    <3
    Maria

    in reply to: Survival…Please tell us your latest milestone #64604
    maria
    Participant

    30 months now, still healthy and strong, still shrinking tumors after 37 rounds of chemo.
    Still cancer without disease.
    //Maria

    in reply to: It was a good day today! #64399
    maria
    Participant

    WOW so happy for you both!!
    Shrinkage is wonderful!! Doesn´t matter if it´s a little or a huge – it´s proof the tumors are dying!!!!!
    Love to both of you!
    Maria

    in reply to: Shrinkage!!!! #64235
    maria
    Participant

    Thank you guys :)
    Percy, we’re both very very tough ;)

    Yes sometimes I just get so tired of this cancerstory that I just decide to forget about it. Just live and never ever think about it again.

    Gavin, he wasn’t, hahaha, how could he deny this poor sick woman such a wish… He will regret it a couple of times during training I’m sure…

    Thanks Kris, I’m impressed myself :)

    I’m on for the cruise! Whenever!

    in reply to: I’m listed #64199
    maria
    Participant

    Wonderful news!! You will be just fine!
    //Maria

    in reply to: First time here, God bless you #64137
    maria
    Participant

    Hello Liliana!
    I would like to welcome you as well. I’m not so far away, i the south part. Of Sweden.
    I was diagnosed 2 years and 5 months ago, almost like your husband!
    I’ve been on gemox, gemsar xeloda and gemcis, 6 chemoembolizations and I feel fine. I have a lot of tumors in my liver, they hav shrunk and they have grown some also, but most important, I feel just fine!

    It’s easy to say don’t be scared, it doesn’t help anyone, but sometimes you do get scared anyway. It’s ok. Life is scary sometimes!
    Hoping for the best for your husband and you, he seems very strong!!!
    Love
    Maria

    in reply to: meeting with surgeon again #64057
    maria
    Participant

    OF COURSE you have to post this here – this is GREAT!!!! It’s working! A dead tumor is a good tumor!!

    in reply to: choices of chemo #63732
    maria
    Participant

    LIKE you’re being in charge!!!!
    Hugs
    Maria

    in reply to: 2nd resection a success! #63877
    maria
    Participant

    Goodgoodgood!!!!! Happy for you <3
    Maria

Viewing 15 posts - 1 through 15 (of 141 total)