markssis2
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Thank you all for your kind words–they help!
And, Lainy, I’ve received signs/winks!
Hugs to you all,
SandyThe meetings at Barnes went well. We didn’t get to meet Dr. Chapman as he wasn’t in the office that day, but we met Dr. Doyle. She was impressive! Actually, we were very impressed with everyone we met there.
Now we wait for Barnes to decide whether to accept my bro into their program…
I just want to scream, “WHAT IS TAKING YOU SO DANG LONG TO DECIDE?!?”
Ahhh, that felt good. Thanks
Thanks for all your support and good vibes!
SisMy brother is meeting with Dr. Chapman tomorrow! I can’t wait to meet him.
Re: Medicare–it’s my understanding now that the country is divided into Medicare zones. Each zone has it’s own insurance provider/administrator. Each zone has discretion as to whether it wants to cover liver transplant for CC. If a medical center wants Medicare to cover liver transplant for CC, then they have to work with the Medicare provider and get them to approve the medical center’s liver transplant for CC protocol. Once Medicare approves their protocol, anyone who successfully completes the protocol will be covered.
Re: California–the UCLA protocol is accepted by Medicare.So happy that Kenny is doing great!
Sis
Hi! Anybody have any further info on this? Medicare in CA will cover liver transplant for CC, but Medicare in Indiana won’t. WTH???
Thanks!
SisDear Willow,
You are spending precious time with your sister that you will never forget. Even though it is hard, you will treasure this time when you look back on it because you gave your sister your all. Everything you said, did and felt was/is pure love and there is nothing more precious than that. You are a wonderful sister to your wonderful sister. You and your family are in my prayers.
SisI’m so sorry about your friend. You are indeed a special person to be able to help her through this journey–she is very blessed to have you. Prayers for you and Bonnie.
-SisHi, Kris.
Physical Therapy helped my brother so much after radiation and chemo. He lost so much muscle mass and energy during chemo. But since he started PT, he’s been getting out and about and is feeling so much better.
Sending positive thoughts your way!
Sis
Hi, Lola.
Just my opinion, of course, but I think if you stay home for classes, you won’t be able to concentrate anyway–you’ll be worrying and wondering what’s going on. Personally, I would feel better being there in person. Make the decision that feels right in your heart.
Prayers for you and your Mom.
SisHe’s doing well, thank you! He’s half way through his chemo and tolerating it well (he just gets very tired). He’s maintaining his weight and his levels are good (white count goes down after chemo, of course). He’s having his first follow-up PET scan today, so we’ll know how things are going in a couple of days. He finally made it onto the liver transplant list, but he has a low score because he has a funky node. The radiation oncologist thinks it’s a reaction to the radiation/chemo and the chemo oncologist thinks it’s not a reaction and wants a biopsy. We’ll find out who is right when he gets the results to the PET scan back. If his node is gone or smaller, his liver transplant points will increase to 26 (I believe that’s correct). He will then start listing at other hospitals in addition UCLA where he is listed now. We’re staying positive and doing what we have to do to fight this menace!
