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markssis2

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Viewing 15 posts - 1 through 15 (of 19 total)
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  • in reply to: My Mom #92872
    markssis2
    Participant

    I am very sorry, Steven.
    Condolences to you and your family.
    Sandy

    in reply to: My mums journey #92779
    markssis2
    Participant

    I am so sorry, Jan.
    Sincere condolences to you and your family.
    Sandy

    in reply to: My sweet Brother #84530
    markssis2
    Participant

    Thank you all for your kind words–they help!

    And, Lainy, I’ve received signs/winks!

    Hugs to you all,
    Sandy

    in reply to: Medicare and liver transplant #75685
    markssis2
    Participant

    The meetings at Barnes went well. We didn’t get to meet Dr. Chapman as he wasn’t in the office that day, but we met Dr. Doyle. She was impressive! Actually, we were very impressed with everyone we met there.

    Now we wait for Barnes to decide whether to accept my bro into their program…

    I just want to scream, “WHAT IS TAKING YOU SO DANG LONG TO DECIDE?!?”

    Ahhh, that felt good. Thanks :)

    Thanks for all your support and good vibes!
    Sis

    in reply to: Medicare and liver transplant #75678
    markssis2
    Participant

    My brother is meeting with Dr. Chapman tomorrow! I can’t wait to meet him.
    Re: Medicare–it’s my understanding now that the country is divided into Medicare zones. Each zone has it’s own insurance provider/administrator. Each zone has discretion as to whether it wants to cover liver transplant for CC. If a medical center wants Medicare to cover liver transplant for CC, then they have to work with the Medicare provider and get them to approve the medical center’s liver transplant for CC protocol. Once Medicare approves their protocol, anyone who successfully completes the protocol will be covered.
    Re: California–the UCLA protocol is accepted by Medicare.

    So happy that Kenny is doing great!

    Sis

    in reply to: Medicare and liver transplant #75673
    markssis2
    Participant

    Hi! Anybody have any further info on this? Medicare in CA will cover liver transplant for CC, but Medicare in Indiana won’t. WTH??? :P
    Thanks!
    Sis

    in reply to: Spending precious final hours with my sister #83763
    markssis2
    Participant

    Dear Willow,
    You are spending precious time with your sister that you will never forget. Even though it is hard, you will treasure this time when you look back on it because you gave your sister your all. Everything you said, did and felt was/is pure love and there is nothing more precious than that. You are a wonderful sister to your wonderful sister. You and your family are in my prayers.
    Sis

    in reply to: Hello, and I am glad you all are here #83701
    markssis2
    Participant

    I’m so sorry about your friend. You are indeed a special person to be able to help her through this journey–she is very blessed to have you. Prayers for you and Bonnie.
    -Sis

    in reply to: Four years cancer free! #83309
    markssis2
    Participant

    Congratulations to you and your Mom!! I love hearing success stories!! :D

    in reply to: My Introduction and history #82970
    markssis2
    Participant

    Thank you for sharing your story, Virginia! It’s great to hear a sucess story! :)

    in reply to: My Husband Frank #82214
    markssis2
    Participant

    I am so very sorry. My thoughts and prayers are with you.

    Sis

    in reply to: Clean scan #82209
    markssis2
    Participant

    That is so wonderful to hear! Your Mom is amazing!

    Sis

    in reply to: Help – Any suggestions? #82081
    markssis2
    Participant

    Hi, Kris.

    Physical Therapy helped my brother so much after radiation and chemo. He lost so much muscle mass and energy during chemo. But since he started PT, he’s been getting out and about and is feeling so much better.

    Sending positive thoughts your way!

    Sis

    in reply to: Should I go to mom’s surgery? #81519
    markssis2
    Participant

    Hi, Lola.
    Just my opinion, of course, but I think if you stay home for classes, you won’t be able to concentrate anyway–you’ll be worrying and wondering what’s going on. Personally, I would feel better being there in person. Make the decision that feels right in your heart.
    Prayers for you and your Mom.
    Sis

    in reply to: Options for clogged stents #76543
    markssis2
    Participant

    He’s doing well, thank you! He’s half way through his chemo and tolerating it well (he just gets very tired). He’s maintaining his weight and his levels are good (white count goes down after chemo, of course). He’s having his first follow-up PET scan today, so we’ll know how things are going in a couple of days. He finally made it onto the liver transplant list, but he has a low score because he has a funky node. The radiation oncologist thinks it’s a reaction to the radiation/chemo and the chemo oncologist thinks it’s not a reaction and wants a biopsy. We’ll find out who is right when he gets the results to the PET scan back. If his node is gone or smaller, his liver transplant points will increase to 26 (I believe that’s correct). He will then start listing at other hospitals in addition UCLA where he is listed now. We’re staying positive and doing what we have to do to fight this menace!

Viewing 15 posts - 1 through 15 (of 19 total)
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