matt69scrambler
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My wife Valeri had her first chemo treatment a couple weeks ago on 2-14-08. Avastin was one of the chemo drugs she was given and on 2-22-08 we went back to CTCA and the tumor is a little smaller. This same day she had more chemo but without Avastin as I think they can only give it every other time. We go back in two weeks to have another scan done.
Thanks,
Matt & ValeriJeffG wrote:Dear Matt and Valerie- It is great to hear that Valeri’s tumor is smaller. And I’m glad to see that you are active in raising funds for cancer research. However, as cruel as it might sound I do feel it is inappropriate to use another foundation’s website by attaching a link to highway of hope to solicit donations for individual donations or any donations. This site supports it’s members in many ways and has it’s own donation program for research for the benefit of all touched by this disease. The Cholangiocarcinoma Foundation has it’s own vision,mission,and values. I know other members have some concerns about you posting this link on this site requesting individual donations. I personally would love to see you as members of the cholangiocarcinoma organization but would prefer that the link not be part of your posts as this just isn’t what this site is all about. Most if not all on this site have dealt with with the financial burden created by this terrible disease. Some members even have trouble with their Insurance Companies approving coverage for certain treatments to extend their lives. So again, I personally would love to see you as part of our family but please drop the link, as we all are aware of the expense involved with fighting this disease. I do pray and wish you both the only the best.
God Bless,
Jeff G.Sorry you all feel that way. It wasn’t ment to be taken that it was just for us. It tells you that a percentage of any and every sale goes to cancer research. There is even a link to this site , cholangiocarcinoma.org . I had even planed on making a donation to this site with $ raised from the Highway of Hope and the muscle car hobby.
We thought we were doing something that could help everyone as the car and motorcycle hobby is huge with lots of nice people that might help us all.
I removed all my post , no problem. I to know I will be selling all our stuff as we can’t pay for all the treatment eithier. I was just trying to use it for awareness while we still had it.I wish you all well, we were just trying to help everyone in some small way .
Johnny Lighting diecast donated a bunch of their car models we are going to sell on ebay and at car shows to raise awearness for Cholangiocarcinoma.
Never know who might be able to help in a big way, just need to get the word out there. I had never heard of it before Valeri found out she has it.
Matt & Valeripderat wrote:Hello all-Dave and I are back from CTCA where we met Matt and Val Wilson. We share the same doctor there and we asked him to look into this drug and hope to have some news about it next month when we go back. Dave was really bad when we got there with a calcium of 14. Feeling much better today after a new drug for the calcium and a week of chemo. Keeping up the fight. Hugs to all.
Patrice and DavePatrice,
It was nice to meet you and I’m glad Dave is feeling better.I had printed off all the information I could about this new drug and asked our Doctor at “Cancer Treatment Centers of America” about it yesterday 2-22-08. He said he hadn’t heard of it yet but asked if he could have my copies so he could find out about it. He seemed real glad that there might be a new way to fight this cancer as he had a smile on his face when I told him about it. We had just walked out of the exam room and sat down when you saw us. It is nice to know that you and Dave went in next and asked him about the same new drug !!!!!!!!!!!!
Doctor said Valeri’s tumor is a little smaller after one round of chemo,great !!! We go back in two weeks and I hope he has some good news to tell us about this new drug. We believe this cancer can be beat and hope many can win the fight. I don’t care what the numbers say as every cancer has been beaten by someone somewhere.
God Bless,
Matt & Valeri
