mbachini
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mbachiniModerator
Tilly,
Such great news! So happy for the good results……breathe now, enjoy some time without worry. All my best to your husband!
Catherine,
Keeping you and your mom in my thoughts and prayers…..she has inspired so many!
Melinda
mbachiniModeratorTilly,
Sending good thoughts, lots of hugs and many prayers your way for great scan results! I am having scans done as we speak, results tomorrow……even after eight years of doing this, it never gets any easier. Darn scananxiety!!!
Keep us posted….
Melinda
mbachiniModeratorKasia,
I would be happy to talk with you anytime! I believe I spoke with Jack the other day, I will be emailing him some more information soon. I will email you from the discussion board so we can connect as well. Take care!
Melinda
mbachiniModeratorAdithya,
I have no experience with these supplements. I am sorry I can’t help with your request. Maybe someone will chime in with experience if they read the post. All my best to you and your father.
Melinda
mbachiniModeratorOutstanding news!! Hoping Patrick feels better soon and can continue the celebration! Much to be celebrated…….I understand your feeling of wanting to hear the words in remission. I have always wanted to hear No Evidence of Disease, in almost eight years of this diagnosis, I have never reached the NED label. BUT, I am doing amazingly well, and I know that is all that matters!
MelindaAugust 23, 2017 at 1:01 am in reply to: Patient Teaching Info for Chemotherapy Drugs and Supportive Drugs #95519mbachiniModeratorThat is so awesome Karen! Thank you!!!!
mbachiniModeratorCatherine,
Your rant was well warranted, and always welcomed! I am so happy to hear of the surgeon consult and PET scan….steps in the right direction.
Sending you and your mom big hugs and many prayers. xoxo
Melinda
mbachiniModeratorDear Kasia,
Welcome! Wow, I love the information you gathered here since yesterday. This board is a great source of information! Please keep us posted on your brother’s decision with treatment. The only question I would pose to the physicians for the HAI pump is will it disqualify you from any future treatments or trials? Hoping to hear from members who have personal experience with it.
All my best,
MelindambachiniModeratorDear Hopeful,
Sending you much love, hugs and prayers for both you and your husband. I am glad that Karen’s postings were helpful to you. Hoping the paracentisis provides for some comfort. We are thankful for you!
Melinda
mbachiniModeratorBon,
Welcome to the discussion boards! We are so glad you are here. I have been a stage IV Intrahepatic patient for almost eight years, so I know the highs and lows you speak of very well! I am glad you have found comfort in support groups. I believe strongly there is strength in numbers and it just helps to know you are not alone in what you are going through.
Please keep us posted on your husband’s progress and ask any questions you have. All my best to you and your husband.
Melinda
mbachiniModeratorJeff,
Wow, what a story! I am so happy you are here to tell it! Thanks for posting and paying it forward as you stated. That is exactly how I feel about sharing my story and talking with other patients and caregivers. Thanks for joining our amazing group, and I know your story will help someone! Please keep us posted and welcome!
Melinda
mbachiniModeratorCatherine,
I am so sorry to hear of the recurrence for your mother. My recurrence was in my lungs, not my liver, three months after my resection. I would definitely push for the completer removal of the floating tumor, especially since it is the only one. Please keep us posted. You both will be in my thoughts and prayers.
All my best,
MelindambachiniModeratorKathy,
Thank you for the information. Please pass on any further information that you feel will be helpful to others. I am so happy it has taken some burden off of you financially. All my best, MelindambachiniModeratorApril,
I loved reading your update! Such wonderful news and hope for others. I am so happy for you and your children. Please keep us updated on next scans and I will keep you in my prayers for continued healing!
All my best to you, hugs and prayers!
MelindaAugust 16, 2017 at 8:42 pm in reply to: IDH1Study. AG-120 in Previously Treated Advanced Cholangiocarcinoma #94705mbachiniModeratorI would love to get some feedback from anybody enrolled in this trial. Please post on this thread your experiences, side effects and results so we can share with other patients and caregivers. Thanks so much!
Melinda
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