mcwgoat
Forum Replies Created
-
Posts
-
Thanks Lainy. I remember this poem from years ago. Thanks for reminding me of it. It brings peace to my heart.
I had three opinions back in 2011 when I was first diagnosed. They were all pretty similar so I chose Memorial Sloan Kettering because of their reputation. I believe I’m in the right place. It’s just when I’m presented with a new treatment, because the previous one isn’t working, I start to lose my hope. The radiation oncologist is hopeful that the SBRT will bring positive results. The surgeon I met with yesterday was very cut and dry. I think most surgeons are like that. Just made me feel doubtful.
Mary
Pam and Gavin,
Thanks so much for your kind words. It really does help to have people that know what I’m talking about. All the info can get so confusing for me so I understand when I tell family and friends that they look a little dazed and confused!!!
The prognosis doesn’t sound too good for intrahepatic cholangiocarcinoma – stage III. The surgeon I met with yesterday said the SBRT is successful in killing the tumor but then there is a high significance of tumors popping up in other parts of the body. That’s really scary. I guess, because I’ve been doing and feeling so well, I find it hard to believe it can get so bad. I’m starting to lose the hope that I have, especially when I read some of the posts of how people decline so rapidly.
Pam, I’ll be thinking of you and Lauren on 3/26. I hope the surgery goes well. Please keep us informed. Such a young girl to have to go through this. My heart really breaks for you. Stay strong!!!
Mary
Hi Lisa,
I’ll be waiting to hear positive results from today’s blood work and scan. You’re in my prayers! Stay strong!!!
Peace,
MaryThanks for the details Marion. I’m just hoping they can put the gold seeds in because if they don’t I’m thinking the radiation won’t be as well directed to the tumor. I’m also concerned about infection and staying in the hospital after the surgery for the spacers. So much to worry about.
addendum to my previous post…forgot to mention that I had MRI and PET scan on 2/14 and that is when they found my primary site in my bile duct and changed my diagnosis from adenocarcinoma – unknown primary to cholangiocarcinoma – Stage III
Mary
Hi Kris,
I had my chemo at the Memorial Sloan Kettering satellite office in Basking Ridge, NJ. My oncologist was Dr. Passalaris there. The surgical oncologist I’m going to see is Dr. Yoon at Sloan in the city. The radiation oncologist is also in the city. Her name is Dr. Goodman.
Hi Kris,
Good luck with your appointment on Monday.
I am being treated at Memorial Sloan Kettering in NYC. I have an appt on Monday with the surgical oncologist to discuss putting a spacer in between my stomach and liver to keep the radiation away from my stomach. At that time he will be putting in the gold seeds in the tumor in preparation for the SBRT. I’m hoping he will give me a surgery date on Monday and it will be soon so I can start the SBRT.
Mary
Hi Lisa,
Thank you so much for talking to me last night. It really helped to feel more optimistic. I’ll be in touch next week after my meeting with the surgical oncologist.
Good luck to you on Tuesday!
Mary
Hi Kris,
I’m a new member and just saw your post from last November. I am going to be starting stereotactic body radiation therapy (SBRT) soon and was happy to see your positive results. Am wondering how you are currently doing? Any advice you can give me regarding this treatment – side effects, etc. – would be greatly appreciated. I was told I would have 3 to 5 treatments.
Mary
Hi Cathy,
I read your story on your website. Thanks so much for such an uplifting story! I hope you continue to do well and enjoy life! So far my liver seems to be good and I have ever been jaundiced. So I guess that’s a positive thing. I am hoping that the SBRT will bring positive results.
Please stay in touch.
Mary
