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  • in reply to: It’s back after everyone thought I was ‘cured’ =( #54548
    medgci-net
    Spectator

    Deb, its been a while since I’ve posted anything too. I was diagnosed with CC 8/2007, had surgery 12/2007, was given a year to live. I went through chemo and radiation for six months. After that, I visited my oncologist every three months and watched my tumor marker rise to 4000 by the end of 2010. So I had two good years to rebuild. I started chemo, gemcitabine and oxaliplatin 12/2010. By 7/2011, my tumor marker dropped to 130 and I asked for a break. My tumor marker is about 300 now and I went for a cat scan today. I don’t have any false hopes. Just time for my next round of chemo. I am 68 years old, and I like to blame confusion, inability to stay focused, loss of memory, fatigue and so much more on old age. Chemo treatments may have helped it along. The cancer has never caused me any pain, and I thank God everyday for that. Its been four years for me and I don’t plan on packing my bags anytime soon. My attitude is that my brain hasn’t told my body that it has cancer. So I live my life as though I don’t have cancer. Good luck and hang in there.

    in reply to: Cholangiocarcinoma #41549
    medgci-net
    Spectator

    Hi Susan,

    I was also told that I had a year to live and this was after the surgery. It’s going on three years and I don’t plan on giving into it. Tell your Mom to hang in there and not to give up.

    Maria

    in reply to: Cholangiocarcinoma #41546
    medgci-net
    Spectator

    Thank you for responding. It seems someone from Alaska had taken their father to a medical center in North Carolina. I was hoping to talk to her. Are you a caregiver or the survivor? Thank you.

    Maria

    in reply to: Cholangiocarcinoma #41544
    medgci-net
    Spectator

    Are there any members from Anchorage, AK with cholangiocarcinoma?

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