megan8

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  • March 29, 2017 at 5:57 pm in reply to: pain following internal/external biliary drains #93002
    megan8
    Spectator

    Thank you to everyone for your help and advice. I can’t thank you enough. This is such a difficult time, and there are not many places to turn for help. I can’t tell you how much I appreciate you all and this group in general.

    March 28, 2017 at 9:02 pm in reply to: pain following internal/external biliary drains #92998
    megan8
    Spectator

    Hi Marion,

    Thank you so much for your reply.
    She had CT scans done on the first day of her hospital stay – so a week prior to the drains being placed. At that time, it did not appear that there were changes; however, she has not had a recent PET scan. I will ask her oncologist about that.

    Thank you for the information on the drains – there are so many new terms and concepts to wrap my head around lately. I am trying to keep up with everything!

    I would love any input from Karen – thank you so very much for your help!

    Sincerely,
    Megan

    December 1, 2016 at 5:16 am in reply to: My mom’s diagnosis and UCSD #93492
    megan8
    Spectator

    Hi Beatriz,

    I so appreciate your reply and advice. How long has your dad been receiving treatment? I would love to hear more about your experience at UCSD if you don’t mind sharing. I have heard such great things about Moores, but as you and others have shared, this is such a rare form of cancer that I want to make sure she is being treated by the most highly specialized medical team.
    My email is Megan.orr8@gmail.com if you do feel comfortable sharing anything further.
    You had mentioned that you were receiving treatment at UCSD as well. I will keep both you and your dad in my prayers.
    Thank you so much for your kindness. I can’t tell you how much I appreciate it.

    Sincerely,
    Megan

    November 29, 2016 at 4:58 am in reply to: My mom’s diagnosis and UCSD #93496
    megan8
    Spectator

    Thank you for your replies Marion and Lainy. I will definitely look into USC – we would like to have her in San Diego, but the best treatment is of course the most important factor.
    From what our current oncologist has said, she will be receiving her current chemo regime until “it is not effective”. Does anyone know how long this time period usually is? And what happens when it stops being effective, or isn’t effective at all? What other options are available?
    The biggest side effect from the chemo so far is constant muscle pain. Has anyone else experienced this?
    I apologize for my many questions. This is all so new and terrifying.
    Thank you so much for your help.

    And sorry about all of the extra posts! It kept giving me error messages, but I guess it was actually working. I think I got them deleted now

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