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This post just made my day!!!
Hahaha! I was just talking to my mum about that and she says that her legs have been hair free since starting the chemo and that she’s enjoying that!!
Mum hasn’t lost her hair but it’s falling. She started her chemo in August. She feels it’s getting thinner. She’s on Gemzar and Oxaliplatin.
You are a real inspiration. I will say I paryer for you to Saint Peregrine, as I have been doing for my mom.
Keep us posted.
MercedesOctober 13, 2008 at 9:48 am in reply to: Butch passed away on October 9th, at peace and at home #23450
I am very very sorry for your loss. I hope time will help you find peace in your heart. My prayers are with you.
Can I jsut ask a question? Why is it important to stop dairy products?
My mum has been experiencing head pain as well. She says it’s on the side a bit higher than her right ear. I have no idea if it’s related to her condition or her treatment but the doctor said that it was probably nothing and that it’s likley to be stress. She is on treatment though.
I can’t really give you any advice on all this as I am new to all this, but what I can give you is the point of view of a daughter who knows that her mum, her best friend, is not going to be here for as long as she thought she would be… I also am sad and afraid that my mum won’t be there for my wedding or for holding my hand when I have my first baby… IT kills me and is what makes me the saddest…. But what I know is that she has prepared to be a good person and has made me the strong woman that I am today. We are stronger than what parents believe… I am 28 now, but I do have a 19 year old brother and I am very confident that we will be OK. I am sure that when all the acute grief is gone and we find peace in our hearts, we will have grown from this experience.
It won’t make up for my mum not being there but this will mean that she will have left us something invaluable and that is who we are.
I do hope you get to do all those things with your son but if you don’t, don’t fret, because you will be there in his heart.
My mum and I live in gray and cold Geneva in Switzerland. This year it seems as my mum says, that they have completely forgotten about fall and switched on to winter straight after the summer. Brrr! It’s so cooold!!
I’m sorry to hear that you had an unsuccessful attempt at liver resection. It must have taken you long to get back on your feet. For my mum this was never an option… hers is growing into the portal vein and she already has one metastasis on the liver. They couldn’t even biopsy it. She did get to stents placed to drain the bile.
Mum is still going to her weekly hair appointment (I think the girls there are like a psychologist for her, they have been very sweet trying to find ways to keep coloring her hair without any chemicals ), to her pedicure appointments and is now enjoying shopping as she has lost some weight…
Let’s hope that this lasts!
When is your next infusion? I’ll keep it in mind and try and send a lot of good vibes all the way to Gerogia. Mum’s actually getting hers as I write this. And in the mean time, if you could send me some of that sun and good weather to Geneva, Mum and I would eally appreciate it!!!
This is helpful, I’m reassured.
We’ve already been to see a wig for mum, she’s chosen the color and everything and it is waiting there until she actually needs it. The guy there said that he would shave it off if she sees that it starts to fall off but so far mum has found ways to make it look like she still has it all she’s a trooper and very creative.
I sure hope you remain nausea free and symptom free. Mum has really been feeling great, except for fatigue on the day of the chemo and sometimes the day after. I really have noticed though that since my family has been visiting from Guatemala and have been here, she’s been doing a LOT of things and it seems like this has reduced her fatigue. I suppose that if you just stay indoors and do nothing you will feel more tired; the oncologist told my mum that she still has lungs therefore she should keep walking and being active, and I really find that it’s helped her.
Mum is in a similar regimen: oxaliplatin and Gemzar. She’s had the hiccups and constipation (!) plus she’s feeling the begining of neuropathy. But all in all she is well. No nausea yet and let’s hope it lasts. She will do her 3rd infusion tomorrow. She is starting to lose her hair and I don’t think I have any conforting words for her regarding this… how do you tell a woman it is ok if she’s going bald??? She loooooves her hair
I had little question though, my moum is being treated one week with both, then one week Gemzar only and then one week nothing and so on. How are they doing it for you all? is this normal procedure? Are you taking it every day? I’m new to all of this…
I have to say all this about the sugar is new to me!! My mom’s oncologist did not recommend ANYTHGING concerning her diet. He did not even say anything about low fat or low sugar. She is eating everything although trying to keep it healthy… Should I tell her to stop sugar altogether? What about drinks? What do you guys drink? (my mom doesn’t seem to like water, nor di I ) I’m guessing that all those sugar free drinks are even worse, no? She keeps drinking massive amounts of cranberry jucie…she calls it her “red wine”. What do you guys think?
Thanks for the help. I have contacted Dr Kennedy and he referred me to the company who makes the spheres who in turn referred me to a specialist in Zurich. I just got off the phone with him and I will send my mom’s file so he can have a look at it. I’ll keep all of you posted.
I will also try and keep you posted as my mom is being treated with oxaliplatin and gemzar. But she only started last Thursday.
Is there anyone here who knows where this treatment is available in Europe?