merilee

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  • in reply to: Newbie #36900
    merilee
    Spectator

    My thoughts and prayers go out to anyone impacted by this disease. I lost my father 5 weeks to the day of his diagnosis. Thank you for all your help and resources.

    in reply to: Newbie #36887
    merilee
    Spectator

    Happy Easter!!!

    Dad is still in the hospital, yes they ran a blood culture and confirmed a infection as well as Pneumonia, he has fluid between the lungs and diaphram they main drain tomorrow. He seems to be responding better to the antibiotic for his specific infection. We have an appointment for him at UH on Thursday, hoping he will be home from the hospital to go. May be a long shot.

    Peace to everyone dealing with this!

    in reply to: Newbie #36898
    merilee
    Spectator

    Thank You again, for the kind replies, my dad is not doing so well, in addition they think he has a staph infection and pneumonia. He has a high fever and is very confused. Very hard to see. We want to move him, but not why he is so weak. Not sure all this goes with the territroy or if he is not getting the best care in the small rural hospital.

    I dont understand why he keeps getting all the other complications.

    Praying for my Dad as well as all of you good people and your families!

    in reply to: Newbie #36895
    merilee
    Spectator

    Thanks Betsey, I will, he is back in the hospital (last night) Pancreatitis. We are looking to move him to UH maybe, we are getting the best support and response from Ireland. For now we are trying to get over the infection, they say he will be there a week. I am so sad for him

    in reply to: Newbie #36893
    merilee
    Spectator

    Thank You everyone, I still think we are in some shock, it seams surreal.

    They could not get the stent in, so he has an outside bag. It went well and thankfully he got to go home. He sees the oncologist tomorrow for treatment options.

    Spoke with the GI Malignant Tumor Coordinator at UH today and got my Dad to sign some realeases to look at his case, We will have the CCF look at them too. Thanks Betsey, I will use your name with Dr Sands.

    Thanks Margaret, we were really hoping for the stent would work. The UH coordinator told me they had some special procedures with them too. I will keep Mayo in mind, not sure my parents have the stamina or resources for that just yet. I am just happy they are willing to get a second opinion in Cleveland.

    I am sorry to be so self centered right now, I appreciate everyones thoughts and warm welcome. I am so glad I found you!

    in reply to: Newbie #36889
    merilee
    Spectator

    Betsey, Marions, Jennifer,

    Thank you all for the great resources.

    Jennifer, thanks for the explanation, I hope he gets the stent too. He had the bag already for a few days, the first attempt at the stent, didn’t work. They actually sent him home to fill back up so it will be easier to get the stent in tomorrow. They did say he might not be able to get it in.

    Thank you Betsey, exactly what I have been looking for, Dr Fung’s name has come up alot. I am not sure my dad is a surgical canidate, having three organs involved already?

    I will definately check out Mark Sands.

    Thank you from the bottom of my heart, my dad had a better day today.

    in reply to: Newbie #36885
    merilee
    Spectator

    Hi

    Thank you for all your kind responses, I appreciate you all taking the time to say hello. I am still serching the site and specifically looking for names of Dr’s in the Cleveland area for second opinion. So far I have not found much.

    Monday they will try again for the drain and or stent. Is it the same? They are hoping to get a internal drain. He is really sick today. I hope Mondays procedure will bring him some comfort.

    in reply to: Newbie #36880
    merilee
    Spectator

    Thanks dads,

    they are in Portage County, I am looking into UH, he is not a surgical canidate because of the involvement. Does not seem to be a specialist in this area.

    Thanks

Viewing 8 posts - 1 through 8 (of 8 total)