mickeydtx
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Thank you for all of your answers. At least I know it is natural to feel this way with these bags. She gets a lot of pain from the right one so she has to take the pain pills which she didnt have to do before. Also lots of leakage, so she’s learning how to clean herself up and of course the draining and flushing.
She too is trying to wrap around her legs and just wear long stuff. I just have shop online I guess and try to find more suitable clothing that isn’t “frumpy”.
SweetGreen: My mom had to have platelet tranfusion. She received 3 regular blood tranfusions but didn’t seem to be getting any better. They ordered the platelet and BAM! It was like a miracle injection. She was sitting up and perky within an hour of it. If they say he needs it, by all means get it.
Isaac-1: Thank you for sharing your experience. So far when her doctors have discussed treatment, they are veering away from surgery due to her age (80). My mother has never been sick in her life and just this ordeal has taken a major toll on her, so I don’t think she would even opt for surgery.
eli: I’m not sure if they have done a PET scan. That’s worth looking into. I will do it. Thank you.
All: She visited her family doctor yesterday, and after reading all of the notes, they are all still convinced that it is CC. I hope we get some better guidance after this panel meeting on Tuesday.
We were quoted 85% sensitivity with Spyglass. She has had a ton of tests since February and all have been benign. BUT CA 19-9 markers have increased and so has the size of the stricture. So I’m thinking this is another false negative, but a 15% possibility that it is benign is significant. Don’t quite know what plans to make because neither me nor my 2 brothers live in the same city with our mother. Very frustrating.
Arrrgggghhhhhh. Turns out she became symptomatic again because the stent became dislodged, bile backing up, and she has an infection. So they could not do the Spyglass. He did do a brushing, but those have not been successful so far. I’m so frustrated. We’ve waited so long for this and now we have to wait longer.
The stent was just put in recently, so my fear is that the tumor is dislodging the stent, but that’s not what they said. Just my gut.
She has been given antibiotics and tentatively scheduled for 10 days from now. All I hear is tick tock, tick tock……….
Thank you all for your comments. I had to find out about the Spyglass on my own and present it to the doctors. My mom is at the James Center, OSU, in Columbus. She was just wheeled in. I’m still in Houston and won’t get there until tomorrow, so I’m a wreck today. But my brother is there with her. I hope we get what we need.
She has had several diagnostic tests and, like you, Eli, all of the doctors are over 90% certain. She has had brushings twice, which have come back negative. Yet, she continues to be symptomatic over and over. They just replaced her stent a couple of weeks ago, and yet, yesterday she was presenting jaundiced again. This makes it seem to me like it is growing and displacing the stent.
I don’t know, but I will let you all know what we find out today.
