mickyma
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I have just seen the specialist and they have decided against the ERCP and instead will do an MRCP. I guess the MRI with the contrast is less invasive?? Could be 4-5 week wait but he said we would get to the root cause of my elevated amylase levels. Thanks for all your replies and information. Michelle
Doctor just called yesterday and since I have some elevated enzyme levels she has talked to the surgeon and is scheduling me for an ERCP. That way too she says they will look at the whole biliary system and she hopes it will provide some peace of mind for me. Hearing ERCP after all those my mom went through is not really providing me peace of mind right at the moment. It’s hard not to be a little worried with the history and all but I’m sure it will be fine.
Have a great weekend everyone, MichelleHello all with an update on my mom and hoping for some insight from you. Mom went back to the cancer clinic 2 months after diagnosis and her surgery to do a baseline CT scan. We were scheduled to go in a week later for the results and to discuss chemo start dates. She started to feel sick that week with what we initially thought was just the flu but her family dr started her on antibiotics just in case. We made it to the cancer clinic where they have postponed treatment once again because of her fever and being sick but I don’t think mom is feeling keen on treatment right now anyway.
Two days later she just got worse and dad called me one morning because of high fever and pain she was having. We took her into emergency where we thought they might tell us her stent was blocked as the cancer clinic told us the tumour had grown in the duct around the stent. That is not the case, instead she had fluid pooling in her abdomen and all her doctor can say is that this is not good. He also said to my dad that chemo would probably not be a good thing for her either.
Would love to hear words of wisdom from you. Is this as bad as it sounds? Kinda feel like this has been taken to a new level and my dad is taking this news very badly. Thanks for your time and for all of you who post to this site, it has been a god send for me as it has such a wealth of knowledge.
Michelle
Just a little update as to what has been happening in the two weeks that mom has been home. She still has an infection in her surgical wound that is leaking lots of fluid and they say bile? She has lost another five pounds instead of gaining some weight and is now suffering great pain on the right side of her back up into her shoulder. Another month to go before they scan again and hopefully start treatment but she seems to be losing ground more than gaining. Not what we were hoping. Her spirits are still good most days but she has lost her appetite for even her favourite foods. A little disappointing but we hope if they can get this infection under control than that may help.
Michelle
This is all so interesting as my mother has an autoimmune disorder and she also suffered from gallstones till they removed her gallbladder.
Michelle
Thanks so much for all your information and kind words. I feel very fortunate that I have found this site and have a feeling I will be coming here alot in the next while.
That initial cancer visit at the clinic is so overwhelming and I already have so much more information from this site. I also have questions that next time I will be asking. Every day she is getting better after her surgery and it seems so surreal to think this cancer is growing inside her.
She is keeping a very positive attitude and loving being spoiled by all her kids. (I was there last night giving her a back rub and my oldest sister is staying with her for a few days and helping out) My sister passed away at 31 years of age from a brain tumour and my mom keeps saying that she has had 40 more years of life than my sister and she is happy and content with all she has done in her life.
She does have some travelling that she would like to do this year and I hope she can keep her strength up to do so. We were given the impression that the chemo would help her do this.
Once again thank you and god bless, Michelle
