miles

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  • in reply to: Mom diagnosed #19679
    miles
    Spectator

    Hi Kara,

    Tough situation but the good news sounds real good!! My prayers are with you and your Mom as she works through her chemo treatments. You are a solid anchor for her support through these trying times.

    in reply to: Mary’s Recent Diagnosis of Cholangiocarcinoma #19302
    miles
    Spectator

    Mary’s Update 3-2-08
    Last two weeks have been good during the surgery recovery. No pain meds required and just a slight drop in weight despite poor appetite. On 3-18-08, the CT Scan in prep for radiation treatment discovered several blood clots in her lungs. Even though she had no symptoms to indicate this as a problem. She was checked into the hospital for treatment of Heparin via IV. On the 19th , about midnight, she went into pulmonary embolism. Very painful and great difficulty in breathing. She was moved to ICU with an even greater delivery rate of heparin. As of this evening she is resting with heparin and pain meds being delivered via IV. Getting out of bed results in both pain and difficulty with breathing (anything is worth it to not use a bed pan ;-)

    This episode has taken a big hit on her typical optimism! She is still waiting to start chemo and radiation due to all these complications. Oncologist and Radiologist remain positive to start their treatments next week despite this recent set back.

    Question for the Forum

    in reply to: home from surgery #19551
    miles
    Spectator

    Outstanding!!!

    in reply to: Not sure where to post? It’s been over a year… #19443
    miles
    Spectator

    Hey Kel,

    Mary had a masectamy followed by reconstructive surgery. By the time her oncologist saw her, he felt that it was too late for chemo and that due to the very early stage of the breast cancer and clear lymph nodes, probably not much benefit. So he placed her on tamoxifen citrate 20mg daily. That and blood work every three months checking for any markers. 3.5 years – no indication of any problems. I still find it amazing that with the close medical supervision that there was no early indications. I lay awake at nght wondering if the blood testing was thorough enough??? The CC was diagnosed looking for the jaundice problem. She was like you – it unjustly just happened. Thanks so much for sharing your situation as it has allowed me to build on the list of questions for her oncologist.

    in reply to: Not sure where to post? It’s been over a year… #19437
    miles
    Spectator

    Hi Kel

    While my Wife and I are just starting through the treatments for this terrible disease, I do not have much knowledge to impart but can sympathise with you on the frustrations with conflicting medical opinions and what seems like a general lack of comprehensive knowledge on part of the experts. Sometimes I feel that I am educating the oncologist. I have found the opinions from the member’s of this group to be invaluable.

    The one bright spot is my wife’s unflatering optimism and positive outlook, a trait you exhibit in your posting.

    My prayers are with you for a positive outcome in your search for knowledge.

    Miles

    in reply to: Mary’s Recent Diagnosis of Cholangiocarcinoma #19301
    miles
    Spectator

    Mary is so strong and such an inspiration. She has gotten off the IV morphine drip and has made some real strides in her state of health. Looks like she will be released from the hospital Thursday and home health care assigned to address the surgical wound from the abdominal abcess. Looking at the positive side, this 3 week period will give her an opportunity to build strength prior to radiation and chemo.

    Thanks to all for your supportive comments and suggestions……….

Viewing 6 posts - 1 through 6 (of 6 total)