mimi

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  • in reply to: Wondering if symptoms show cancer advancing #35751
    mimi
    Spectator

    thank you so much Kris and Gavin for your support. Hospice gave my grandmother some new medication to help her be more comfortable and Nan is feeling much better today, even talked about food she was hungry for. I reminded my grandmother and her caregivers that hopsice is there to make Nan comfortable and that they should not wait to call hospice.

    in reply to: Wondering if symptoms show cancer advancing #35748
    mimi
    Spectator

    thank you Marion, I am expecting a call from hospice this morning with an update. It is so strange how quickly this has happened but from reading posts here it seems that is the nature of CC.
    – Mimi

    in reply to: My grandmother has cholangiocarcinoma #35469
    mimi
    Spectator

    Thanks so much for this wonderful perspective on grandmas Lainy. There is nothing like tradition, and yummy food, to bring a family together. It sounds like you have been truly blessed with a wonderful family. Best, Mimi

    in reply to: My grandmother has cholangiocarcinoma #35467
    mimi
    Spectator

    Thank you Patty for your offer of help – it helps so much to be part of this community. I am in downstate IL (Springfield) though I used to live in Chicago and especially miss the delicious food!

    You are so right about the unique relationship – it’s an irreplacable part of you which makes it special and also poignant thinking about losing it. It actually hit home when I took my son to the allergist this week – we were discussing allergy shots and I said that I had them as I child and the doctor asked how old I was when I got them. I thought “I’ll need to ask Nan” (my name for my grandmother) and then I thought, wow, I won’t be able to do that soon…she has so much of my own history inside of her.

    Thanks again for reaching out Patty, and stay warm! Best, Mimi

    in reply to: My grandmother has cholangiocarcinoma #35465
    mimi
    Spectator

    Marion, thank you. There are so many resources here, so many caring people. Just what I need. Best, Mimi

    in reply to: My grandmother has cholangiocarcinoma #35463
    mimi
    Spectator

    Thanks so much for your support Darla and Gavin. I am very sure that I will be a frequent visitor here (and thank goodness all of you are here!).

    My best,
    Mary

    in reply to: My grandmother has cholangiocarcinoma #35460
    mimi
    Spectator

    Thank you so much Kris and Lainy for your kind words and support. I am very thankful that I have amazing people like you in this forum. I look forward to keeping in touch. Best to both of you and yours.

    in reply to: My grandmother has cholangiocarcinoma #35457
    mimi
    Spectator

    Dear Margaret, thank you so much for your note. You are right that I would have rather not known about CC but now that it has become a central part of my life, I am so thankful for this foundation and for people like you who understand and care (I have been reading posts over the last few days and am so touched by the warmth and caring expressed on this site).

    I neglected to put my grandmother’s age in my intro – she is 86 and her birthday is March 29. I have not made airline reservations yet since there are so many unknowns but I plan to spend her birthday with her if the fates allow.

    In between talking about her care, how she is feeling, we do spend time remembering our lives together. In fact, the name I use here “Mimi” is my family nickname and when my grandmother passes there will be no one who will call me that again. My given name is Mary and when I was young I used to hide from my grandmother when she called out “Mimi!” in stores because I was embarrassed – now I treasure it and will so miss hearing it.

    I wish you and your husband the best in his treatment. I know that my grandmother decided not to treat in large part because of her age. She just did not want to go through it. I hope that his appointment tomorrow goes well.

    Thank you again for responding so quickly to my post. It is good not to feel alone. Take good care and keep in touch. You are actually just north of me as I live in Illinois.

    Mary a.k.a. Mimi

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