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Viewing 15 posts - 31 through 45 (of 726 total)
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  • in reply to: Hello From Mississippi!!! #60181
    mlepp0416
    Participant

    Brenda:

    Welcome to your new family. You will find a lot of support from members of this site. Feel free to ask any questions, rant and rave, cry, laugh, etc. We are a very great group of people. Many of us have been through a lot with our loved ones and have a lot of knowledge about CC that we have gained through personal experiences, trial and error, etc. We love to share information that we have gained!

    My thoughts and prayers are with you and your family. Be sure to ask a lot of questions, make sure your husband’s doctors have experience with CC. Take a recorder along with you when you go to doctor’s appts, etc. Because then you can play it back and re-listen to it. Write down your questions and make sure that you get answers to them, or if the doctor cannot answer them, then request that he find the answer! Don’t be afraid to question things that they are doing. The more informed you are the better! Never take no for an answer, make them think outside the box.

    Hugs,
    Margaret

    in reply to: Mommy #60147
    mlepp0416
    Participant

    TJ,
    My thoughts and prayers are with you and your family during your time of loss. Take time to reflect on your mom’s life and all that she meant to you. Memories live in our hearts forever.

    Hugs,
    Margaret

    in reply to: Could this be possible? #60153
    mlepp0416
    Participant

    Let’s just say that if it’s anything worse….I AM going to Hawaii for a vacation. Quitting my job, giving my house to my daughter and going to live out my life with my son and his wife….at least that is my thought process for now.

    Expecting the worse, hoping for the best.

    Hugs,
    Margaret

    in reply to: Good-bye Brother #60072
    mlepp0416
    Participant

    My thoughts and prayers are with you during your time of dealing with the loss of your brother and your mom. I know what you are going through.

    Hugs,
    Margaret

    in reply to: Grover’s updates #58368
    mlepp0416
    Participant

    Grover:
    Glad that they finally seemed to have figured out the best way to resolve your issues! Best of luck and KEEP ON KICKIN’ THAT cancer.

    Hugs,
    Margaret

    in reply to: Hello everyone! #59570
    mlepp0416
    Participant

    Just want to chime in here and welcome you to the site.

    We did not call in hospice until the very end. To my husband Tom, having ‘hospice’ was quitting and he said he would not quit. After his last 3 1/2 days in the hospital, then sent a pallative care person out and I took her aside and told her that he needed hospice.

    The hospice team was there in about 1/2 hour and the next day two gals came and gave him a bed bath and shaved him. All we had to do was to run to the pharmacy and get the meds they ordered for Tom.

    He was only on hospice 3 days before he passed and after he passed they were there within 1/2 hour or so and took care of all the paperwork and calling the cororner and the funeral home. That made it easy on me and my two daughters did all the phone calls that needed to be done.

    After T’s experience with inpatient hospice, I’m very glad that I kept Tom at home and I made sure he got his morphine when he needed it. He died peacefully, at home, which is where he wanted to be.

    Again, Welcome
    Margaret

    mlepp0416
    Participant

    Amy:

    I’m so saddened by this as I know you were hoping for a much different outcome. I agree with the others, take whatever time you have left and make it memorable. Take lots of pictures and just enjoy being with your mom.

    Hugs,
    Margaret

    in reply to: Great 4 1/2 year check-up #59853
    mlepp0416
    Participant

    WONDERFUL NEWS! I’m so happy for the both of you! KEEP KICKIN’ THAT cancer!

    HUGS,
    Margaret

    in reply to: any help available with copays? #58510
    mlepp0416
    Participant

    Cindy:

    My husband Tom was classified as non-service connected disabled and was able to get a pension from the VA for about 16 years. His pension was $985.00 a month and all of his medical care that he received from the VA was free. He did not even have to pay a copay for his meds – most of which came from the VA.

    Has your husband checked in with the local VA to file for any type of disability, service or non service? If he has not done so already, please do it. They may be able to get him classified as disabled and he may be able to get a non-service disabilty pension along with medical care.

    Tom and I did switch to civilian doctors but his initial surgery and a lot of his follow up care was with the VA – as much as possible but for radiation and chemo we did it locally because of the travel time to/from a VA facility.

    One of the nice things about using a VA facility – generally if your insurance does not cover their charges, the VA does not bill the Veteran. Also you can check if the VA is in or out of network with your insurance. The VA is trying to become in network with most insurance companies as they are now billing private insurances. Shortly before Tom passed, they became participating with our private insurance.

    We also filed a claim with the VA for Tom’s CC, but it was declined. I have not yet appealed the decision because I have been dealing with Tom’s death, etc. but I do plan on appealing it. It is very hard to prove, their standard “You did not have any symptoms upon discharge from the service or during the service, and you were a smoker” therefore the claim is denied is pretty standard.

    Good luck,
    Margaret

    in reply to: medicare #59021
    mlepp0416
    Participant

    Sally:

    Has your sister worked at her company for over a year? If so, has she applied for FMLA? That would give her 12 weeks a year for being off work due to her illness. If she has FMLA she cannot be fired from her job due to her illness. Her job can also give her personal leave if her FMLA runs out, but at that point they do not have to hold her job for her. Difficult situation at best. I was lucky w/my job situation while my husband Tom was ill. I was able to start working from home and had friends that would take Tom for his medical care at times so I never used all my FMLA. It’s different when you are the patient because you have no choice except to use the time off.

    In my last post I failed to mention the ‘donut’ hole for Part D Medicare. On part d, the insurance pays for prescrption drugs up to a certain point (don’t remember the $$ amount) then the person pays 100% for the drugs (again up to a certain $$ amount) “This is the donut hole” and after that point the part d then starts paying.

    Has your sister looked into the possibility into getting into a state group insurance for those with severe medical issues? I think you have to have been uninsured for 6 months before you qualify though.

    It kinda sucks all the way around. It can be hard to even get medical insurance once you have a cancer diagnosis and life insurance is out of the question! The so call ‘pre-existing’ rule where life insurance companies cannot use pre-existing conditions against people is ONLY for those under age 19…at this time. Eventually the Health Care Reform will encompass everyone but not until year 2014 or some such date.

    I wish I had better answers – you need to get in touch with Social Security and ask these question of them. Sometimes they can ‘rush’ an application through given the severity of the situation and can get a person on Medicare within 6 months or less. It’s worth a try.

    HUGS,
    Margaret

    in reply to: port for chemo #58176
    mlepp0416
    Participant

    Lainy: I have to respond to your last post. When they ‘killed’ Tom’s tumor that was ‘blocking’ the bile duct, the radiation also apparently destroyed that bile duct so that is why they could not get a stent internalized. Bile ducts can also become ‘restricted’ or ‘narrowed’ which would cause the bili level to climb as the bile is not flowing through that restricted bile duct. Many times a tumor can completely block a bile duct which would also cause the bili level to climb.

    Scar tissue can also ‘block’ a bile duct. Scar tissue from a ‘dead’ tumor, or scar tissue from a surgery. All of these things can result in a person’s bili level to climb.

    Additionally there are a whole host of other things that can cause the bili levels to climb. Even a tube exchange will call the bili level to rise, or an infection in the liver.

    Don’t want to step on anyone’s toes, but just had to chime in on this one.
    Hugs,
    Margaret

    in reply to: Awaiting diagnosis…why is this taking so long? #59616
    mlepp0416
    Participant

    Twoforjoy:

    You should be able to change your husbands PCP if you have an HMO plan. Please look into that. An HMO does need referrals to a specialist and the specialist also have to be in network. If your husband’s current PCP will not do the referrals, then please check into changing PCP’s!

    A PCP should be willing to do whatever it takes to get your husband to the doctor’s that he needs to see.

    Let me know if you have any questions. I currently work for a large insurance company and am willing to help you with any questions you may have.

    Hugs,
    Margaret

    in reply to: 47 year old husband CC as second primary #59586
    mlepp0416
    Participant

    Amy:

    You have a huge family now! I consider everyone on this site as part of my family, even though I’ve never ‘met’ anyone of them in person. This site was a lifesaver to me when my husband Tom was diagnosed with this cancer in 2008.

    During his journey with CC we hit many bumps in the road as well as twists and turns. He too lost a lot of weight. Tom’s journey ended on 11/20/2011 and he is at peace now. We never gave up the fight and always hoped that he would beat it. Throughout it all, he never worried about himself, he just worried about others.

    Keep in mind that your husband needs calories now, more than ever. Get whole milk, peanut butter, high fat content foods, etc. Also, Boost Plus is very good and if he can’t eat ‘food’ he will most likely be able to drink the Boost Plus and that is just like a meal. He needs to keep his weight so that his body can help fight the CC.

    I’m very glad you found this site, but at the same time so sorry that you had to find it.

    Hugs,
    Margaret

    in reply to: Jim’s passing 30 March 2012 #59781
    mlepp0416
    Participant

    Elsie: I’m so very sorry to hear of your Jim’s passing. I know full well what you are going through. I lost my husband Tom on 11/20/11 from CC. We have way too many people from this site leaving us. We need to get those big companies to start doing more research on this cancer and hopefully they can find a cure someday soon so that we do not have to loose so many of our friends and loved ones!

    My thoughts and prayers are with you and your family. Hang in there.
    Hugs,
    Margaret

    mlepp0416
    Participant

    shlamoney:

    I think that the loss of appetite goes along with the chemo. My husband Tom had the same issue. He did drink lots and lots of Boost, 1 bottle of Boost has as much calories as a full meal. He did use the Boost Plus as it has even extra calories. This will help you maintain your weight.

    Little meals or snacks (High Calories) is a good thing. The more calories you take in the better it will be. Tom, for a long time, could not stomach the taste or smell of eggs…but that eventually went away. He did suffer from chemo brain and called ‘Boost’ Bounce! Everytime he asked for a Bounce I had to think about what he was talking about! Drink whole milk (for the calories) and basically anything with high protein and high calories!

    You need to rest as much as possible, but also get up and move. With Spring just around the corner, hopefully you can get outside.

    Love and Hugs!
    Margaret

Viewing 15 posts - 31 through 45 (of 726 total)