momedge
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Thank you for the input, I went to the USC website, will be calling tomorrow… Does anyone know of any grants to pay for second or third opinions that my insurance won’t cover? I am unable to change insurance at this time, when that option comes around it may be too late. It feels good to find some support on this rare disease.
Does anyone know of target chemo options for bile duct cancer? Or genomics testing to identify the genetic makeup of the cancer to determine what treatment might work best? Is this something Kaiser might be willing to do?
Has anyone used low dose, non toxic chemotherapy with insulin potentiated therapy… How can I avail myself of this treatment? I read about it being used by an oncologist in Reno, anyone have any advice how to see if Kaiser can do this?
I have been diagnosed with stage IV intra and extrahepatic biliary cancer. The tumor has grown to press on the duodenum. I have been going to Kaiser Sunset for treatment. They have put in stents(metal now) in the intrahepatic and main bile ducts, just this last week a duodenal stent. Kaiser has said all they can offer is palliative treatment. I have begun taking Poly MVA and am considering GcMAF as well as the Gem/cis chemo kaiser wants to do. Does anyone have experience as to what this accomplishes.? My oncologist said he is a fellowes at Sedars and UCLA so led me to believe that there are no target chemos known for cholangiocarcinoma .Looking for any experiences of what has helped others… Some have said GcMAF is promising, I am willing to go homeopathic and natural medicine as well as medical, I just wonder if the lowering of the quality of life from the Chemo treatments will be worth their effects??
