Mommers

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  • Mommers
    Spectator

    I just came across your post about Dr Ian McGilvray. My husband was diagnosed in September 2018 with a tumor in his inferior vena cava. His surgeon consulted with Dr McGilvray to see if it was even possible to get it out. He had his surgery 11/26/18. The plan was once they got to the tumor the transplant team (that doctor  had studied with Dr McGilvray) would replace the IVC with a synthetic one. Fortunately when they got in there the tumor was not in as deep as they thought so the transplant team only had to patch the IVC  & not replace. They also only took 5% of liver vs the plan was to take 1/3. We are so thankful for Dr McGilvray & his consulting that it was possible to get it out. The tumor was Stage 1, no lymph nodes involved. It was found by accident while doctoring for something else. We are so thankful.

    How is your dad doing? Does he still have to have scans?

    in reply to: New here! #97892
    Mommers
    Spectator

    Update:
    My husband had his surgery on 11/26/18. It went better than expected! They did go in with a camera first to insure no spread before they opened him up.
    They were able to lift the liver up to see the tumor – originally they were going to take the gall bladder & 1/3 of liver & replace the IVC with a synthetic one. They ended up leaving the gall bladder, only taking 5% (caudate lobe), & were able to patch the IVC instead of replace. They said surgery could take up to 12 hours but it was only 6 1/4 hours – we are so thankful!
    Pathology came back as pT1aNO, Stage 1, no lymph nodes involved.
    We see the surgeon & oncologist on Tuesday the 18th for follow up & to get staples out.
    We will find out if he will need chemo pills or not.
    Any input from anyone with similar experience would be appreciated- TIA!

    • This reply was modified 5 years, 4 months ago by Mommers.
    in reply to: New here! #97728
    Mommers
    Spectator

    My husbands surgery has been scheduled for November 26th – we had hoped sooner, but it’s a lot of people involved so I’m sure that’s why it’s taken longer to get a date.

    He seems more tired than usual but I don’t know if that’s from the stress or maybe not sleeping as well? I said he had no symptoms previous to finding this & he hasn’t had any blood tests for a while. Is it something we should be concerned about?

    Thanks!

    in reply to: New here! #97711
    Mommers
    Spectator

    Thank you for responding!

    My husband has made the decision to have surgery. We should hear this week on the specific date. Because it involves the transplant team to replace the IVC there are a lot of people involved.

    I will update when we know the date.

     

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