momsdaughter
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Wow Barb,
I am so glad to hear from you. Dr. Lenz since 2004… that’s wonderful. We were just in today for chemo and had a visit with Taline. God really does work in mysterious ways. We originally thought that my mom would be gone soon and Dr. Lenz really did not offer much hope, but here we are 9 mos later and hanging in there!
Dr. Selby was an angel for us. He speaks fluent Spanish which my mom felt more comfortable with. The empathy that man showed was remarkable given the circumstances. I guess having lymphoma will do that to anyone. we will never forget him.
Thanks for writing!
Happy Holidays!JoniandJoe, thank you for writing. You will find that it helps tremendously to get things out. I was feeling very frustrated and alone and then I got the courange to write about it. I have screamed at the top of my lungs on several occasions and it really feels good!!!
My mom has stage 3 extrahepatic bile buct cancer. It has spread to some lymph nodes, but no other organs. Please don’t give up hope, hope is the most important thing we have. How is Joe doing mentally? It’s so hard to keep your spirits up, but it’s so important for his sake.
I think that since this is such a rare disease, it’s important to find doctors that have experience with this. My mom originally had a plastic stent put in too, but they took it out when they did the whipple. They basically cut out the entire bile duct, duodendum,and gallbladder, then part of the pancreas, small intestine, and stomach. Then, they restructured everything to work again. It was a tough recovery, but she is doing very well now. They think they got it all, but you never know. Now her lymph nodes are enlarged. We will have another CT scan in a few weeks to see where we are, but in March it will be a year that we thought we would not have with her. What a blessing!!
Good luck to you and I hope this helps! Take care!!
I think the emotional roller coaster is just the worst thing and I have had to figure out to take everything slowly and not get ahead of myself, but it is very hard. I just know that there is a hard, long road ahead of us that will eventually lead to heartbreak, so we need to enjoy every moment now.
USC has been a blessing to our family. They are wonderful, proactive, and very responsive. If you need an oncologist in the Los Angeles area, Dr. Lenz is it. Dr. Selby is a great surgeon. Do whatever is necessary to see them if you need help, you will not be sorry. You can find out more information on them on the USC website.
Thank you for being such a support for so many of us out there. Never give up hope! Hugs and blessings to all!!!!!!
