moonpie1
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again, thanks for replying to the post so quickly,
I don’t think my mum was put in a twilight sleep as she came out quite anxious of the procedure, she hasn’t mentally prepared herself or accepted that she may need to have another ERCP let alone more follow up work, my dad and I have been telling her white lies until Thursday evening when I sat down with mum and had a more open and truthful chat, whilst I don’t want her to get worked up and use up valuable energy, I don’t want it all to come as a big shock either, mum has come to terms that whatever the outcome is, there will be follow up work needed and she has a more positive look on things.
thanks clarem, I will take a look at that page, in the job that I do, I work closely with a hospital and can speak to a range of people at that hospital to explain the more technical things, I feel more reassured that a specialist team are looking into things as I would be worried sick if the decision lay only with our local hospital.
I am back at work tomorrow, I have had two weeks off to support my dad as we are a small family and it has really been myself and dad supporting mum through this time, luckily work have been brilliant and no pressure but I feel I need to get back as more time off in the future may be needed.
The gp said that she wil ring either mon/tues a soon as she gets the report from the specialist mdt, I believe they had a secretary taking minutes down so its really down to the efficiency of admin now,
thank you lainy and gavin for your swift replies. I have had a bit of a look through this website and think it is a fantastic and supportive tool and have read that many people have been on very difficult journeys and my heart goes out to you all and hope that with the support of family, friends and this website, people have the strength to get through it.
mum was dealt with by our local hospital, however this hospital have a very poor local reputation for a number of key clinical and administrative tasks, luckily my mums ERCP was done at another hospital within the trust but has a much better reputation, the mdt was done between the local hospital and a dr where the ERCP was done but they thankfully accepted that they cannot manage the case so the case was sent over to Blackburn Royal- hepato-pancreatic biliary team for their discussion. I have done some reading about the team and they are a specialist team for bile duct,liver and pancreas issues and seem to have a good reputation.
gavin, my mum had a plastic stent put in, I have heard that the plastic ones need to be replaced fairly often, Im not sure whether the plastic one will stay in or whether they will do something else pending diagnosis. my mum has had asthma most of her life, she is now 62 . the copd was something diagnoised about 3-4 years ago, she is on inhalers, often on steroids, antibiotics and nebuisers at home, it got so bad that we have home oxygen on standby.
