mrbuchele
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kv and Lainy, Thanks for your quick replies,
Yes his catheters are internal stents & external drainage pouches. Hospice would take care of Rod at home, but if we wanted to go anywhere to have the catheters replaced, etc. we had to go off hospice. Insurance covers either hospice (pallative) care or regular care, but we couldn’t have both. Home health care was also limited to home-bound patients.RE: Naturopathic treatments: We have not excluded any conventional treatment for naturopathic, but I’m convinced that one of the remedies that Rod started, even before the “official” diagnosis did help, because 2-3 days after he started it, food tasted good for the first time in a couple of months. He’d been complaining that all the restaurants just didn’t turn out the same good tasting food. We didn’t recognize that as a symptom. The surgeon was surprised that with the size of the tumor Rod did not show signs of jaundice. When we were told it was non-resectable, we did not seek 2nd opinon at that time.
Re: the infections (there were 2) I think happened because he only rec’d antibiotic while in outpatient recovery or during procedure, and wasn’t prescribed follow-up antibiotic – that’s one possibility for the infections. Only after talking with friend fighting CC did we realize he should have been prescribed it. Our primary care physician (also the hospice doc) did prescibe it after we asked. But that’s a long story.
He has Medicare Part A which has covered when he’s been admitted, otherwise his private insurance has covered a lot. Hospice is covered at 80% and whatever is not covered this hospice agency writes off – but then then don’t allow the type of service that he needs for catheter replacement. We are 4 hours from Wichita, 7 hours from KC, 5 from Denver.
kv and Lainy, Thanks for your quick replies,
Yes his catheters are internal stents & external drainage pouches. Hospice would take care of Rod at home, but if we wanted to go anywhere to have the catheters replaced, etc. we had to go off hospice. Insurance covers either hospice (pallative) care or regular care, but we couldn’t have both. Home health care was also limited to home-bound patients.RE: Naturopathic treatments: We have not excluded any conventional treatment for naturopathic, but I’m convinced that one of the remedies that Rod started, even before the “official” diagnosis did help, because 2-3 days after he started it, food tasted good for the first time in a couple of months. He’d been complaining that all the restaurants just didn’t turn out the same good tasting food. We didn’t recognize that as a symptom. The surgeon was surprised that with the size of the tumor Rod did not show signs of jaundice. When we were told it was non-resectable, we did not seek 2nd opinon at that time.
Re: the infections (there were 2) I think happened because he only rec’d antibiotic while in outpatient recovery or during procedure, and wasn’t prescribed follow-up antibiotic – that’s one possibility for the infections. Only after talking with friend fighting CC did we realize he should have been prescribed it. Our primary care physician (also the hospice doc) did prescibe it after we asked. But that’s a long story.
He has Medicare Part A which has covered when he’s been admitted, otherwise his private insurance has covered a lot. Hospice is covered at 80% and whatever is not covered this hospice agency writes off – but then they don’t allow the type of service that he needs for catheter replacement. We are 4 hours from Wichita, 7 hours from KC, 5 from Denver.
