mtanaka
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Hi Lisa,
Thanks for the info. Yes, he has a “metal stent”. First time, it was thought stent was blocked and infection was due to that; after subsequent CT ONC said stent is not blocked. Original stent which was placed did not work and he has had this one since December 2012. Lisa, these smaller issues are day in and day out which requires attention and YES they drain you. It pains me terribly when he goes into the “uncontrolable shakes”, his entire body is shaking, I hold him tight but nothing helps….and then of course the fever spikes and we rush to ER.
I am pushing water/juices comsumption to max.
Good point: infectious disease expert, we will mention to ONC.
Thanks so much. Un abrazo. Rose
Marion, Jason and Lainy,
Thanks so much for your feedback. Everything helps to understand better how to manage this desease.
Jason – thanks for the link, I will read it. When we meet with ONC on Monday, we are leaning towards discussing a dose-reduction and see how it goes from there.
Marion – major markers to monitor my husband’s condition normally are: billirubin, platelates, neutrophils, WBC, HGB and so on. Perhaps they are doing this test, but we have not discussed it its level. If not done, I will ask.
Lainy – your husband’s “blood infections” follow the same pattern as mine’s. Three times I rushed him to ER; urine & blood test (culture) were done + chest x-rays, ultra and CT scans. 1st time he was even put in isolation due to possible contamination……you know, Lainy, it is all so distressing! Everytime, they start him on Piptazo (Amoxicillin/ clavulanic intravenus and/or + piperacillin/tazobactan), last time they added Banco just to rule out a possible infection which was not detected the previous times; three days after he is fine and he is discharged. Everytime is works exactly the same. Everytime the discharge note reads differently. 1st time pneumonia; 2nd time cholangitis, 3rd time (don’t remember). Nothing was found in blood cultures. For this reason we are leaning towards the comment Jason made – dosis of Zeloda may be too strong…….I hope it is this.
Thank you all. It is indeed great to be able to get ideas about other cases and also been able to talk about our concerns.
I am also praying for all of you. Un Abrazo. Rose
