mumhazel
Forum Replies Created
-
Posts
-
Hi, Gavin, thanks for your reply. I must have confused you as I am the mother and it is my daughter whom I am trying to help to beat this awful disease.
I don”t think she feels ready to meet with any cancer support groups, she seems to think that we can find out all the information she needs.
That is why I am so glad I found this site as you have so much useful information but more than that, you all care.
Hi, Marions. Thanks for the links. I will pass them on to my daughter.
She goes to Christie’s tomorrow and should get her scan results, fingers are crossed these will be clear.
If her bloods are right she will start her chemo tablets, capecitabine, so we all need to know what is good for her and will try to keep her germ free. Not easy as most people have coughs and colds as it is so damp and miserable here in the UK.
Hi, Lainy. Like most people we keep hoping for a miracle food to cure my daughter and then try to find the research to back it up.
It is very time consuming making the broccoli juice so I thought the tablets might be easier for her.
The juice looks awful enough but she then drinks a glass of water containing spirulina I have also researched that with again conflicting views on its worth.
Maybe it is enough that she thinks they will do her good as long as they do not harm her.
She goes to Christie’s tomorrow and should get her scan results, fingers are crossed these will be clear.
Hi, Marions. Thanks for the links, I will send them to her.
Every day she makes a juice out of broccoli heads and other fruit and vegetables. I have been researching the active ingredient in broccoli, sulforaphane, and it seems that 80% of this is lost even when the broccoli is kept in the fridge.
There are tablets available which contain sulforaphane but I am not sure if they would be better for her and if so, what dosage she would need.
Have you or anyone else got views on this subject?
Hi Lainy, Gavin and Marions. My daughter had a CAT scan yesterday and if all goes well she will start her chemo tablets on Monday.
I have been helping to look after her 3 children as she is still unable to drive but I have developed a really awful cold and so have come home. Her 4 year old son is always full of cold, will this affect her when she starts chemo? I am supposed to return on Tuesday, will I be a threat to her?
She has 2 cats and their food dishes tend to get washed with the family dishes, is this wise?
Are there food restrictions that she should be aware of?
Maybe I am being too cautious?
Hi. Lainey, Gavin and Marions
It is great news that she can have chemotherapy. . She went to Christies and saw Prof Valle and as well as agreeing to start the chemotherapy on 18th of this month he is going to give her new CT scans and re-assess all her histology results.
He explained everything fully and inspired her with new hope and confidence that she can beat this awful disease.
Thank you so much for the links and providing all the information, but most of all, thank you for your support and caring.
Hazel
My daughter saw the new oncologist yesterday with a much more positive outcome. He agreed that the potential statistical benefit of chemotherapy for CC was the subject of much debate but believed that until firm evidence is available to the contrary the patient should be given the option of chemotherapy. He fully explained the pro’s and con’s of chemotherapy and assessed my daughters physical and mental fitness to undergo the treatment. The outcome being that subject to satisfactory blood tests etc, she will start a 6 month course of oral Capecilabine later this month.
While not understating the seriousness of her CC, based on his review of her results to-date the Oncologist gave her a much more optimistic prognosis. He has also agreed to do a new full CRT scan and to review/reassess all her original Histology results.
In summary while understanding that she still has a long way to go she is in a much happier state of mind.
At this point she would rather that I continue to speak for her on the forum.
Hi Pat,
When my daughter arrives, later today, I will get her to read your post and all the others so she can make an informed decision.
Thank you all for showing the support for us, this is a brilliant site.
Hi, Lainy. I think you misunderstood my message. The oncologist is not going to offer chemo but she will get scanned every 3 months, to make sure she is clear.
She will see a specialist at Christys tomorrow, as she wants a second opinion., but on checking the Internet, he is part of the study, so maybe his answer will be the same.
Hi Julie, thanks so much for telling your story. Your initial surgery and the size of the tumour seems very similar to my daughters. I hope you are recovering well from your second operation, was it as bad as the first time? My daughter spent 2 weeks in intensive care as they could not control her pain, even the epidural did not work.
My daughters oncologist said there was no definite evidence to show that her sort of cancer would respond to chemo, so he wants to wait for the results of a trial that will be published in a years time.
Surely, for the trial to be a success some people are going to be offered chemo and some will not. I can”t help but wonder how they will get the results without choosing not to give chemo to some people.
What if the trial does prove that chemo should be used, but by then it might be too late for my daughter ?
She is coming to visit tomorrow and hopefully we will get to walk by the sea, that always makes us happy. I will let her read my posts and see for herself how positive this site is.
Take good care of yourself and try not to overdo things.
Hazel
Hi, Marions. My husband spoke to Helen before Christmas, but it was before we knew that my daughter had been refused chemotherapy.
He has mailed her tonight on this subject and is waiting for her reply.Thanks for caring,
HazelHi, Lainy, thank you for replying so quickly, I am so glad I found this site.
It is hard to stay positive when most sites are full of doom and gloom.
I am so proud of her, she runs her own business as well as looking after the 3 kids and tries never to let this get her down, but sometimes the enormity of it all suddenly overwhelms her.
Like so many people I keep asking why it happened to her, as she is very fit, has never smoked and rarely drank alcohol.
She needs to know there are success stories so she will never give up.
