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“HECK” no, Lainy, I was the one doing the escorting. I look pretty darn cute in my class A uni too. :0)
My last scan was scheduled at 6:45pm. Would have been OK except when I checked in they asked if had had been drinking contrast for the past hour. Nobody had even mentioned drinking contrast or asked me to come pick some up. Really ticked me off. So, I began drinking contrast, the MRI tech agreed to stay later and I had my scan sometime around 8:30pm.
There’s my story and I’m sticking to it.
I am 57 and consider myself the youngest person on this site. :0)
I understand the days when you just want to get mad and yell at something or someone. Let it out the best way you can, ’cause it just has to come out.
Then, take a deep breath and know that many many people here love you and share your pain and anguish.
I don’t know Dr. Javle personally, but I have somewhat of a connection. My Onc used to work with him in Houston before moving up here to Salt Lake City. I hear nothing but good about him, but with this disease, no doctor is a total miracle worker.
Keep your chin held high, kiddo. We are pulling for you. Yes, I had a great 4th of July. My wife and I rode with the Sheriff’s posse in a parade yesterday, then enjoyed a picnic and played on the lake with friends. Hope you did something fun.
Hey, mmking, looks like you are just up the road from me. Huntsville is not too far from Hooper.
Wow, is all I can say about your mom. What a constitution. I went through 2 1/2 rounds of gemcitabine/cisplatin and it just did a lot of damage and didn’t stop my cancer from growing. I’m jealous :0).
Welcome to this sight and please keep us posted.
Words do not really do justice to how you must feel right now. Just know that my thoughts and prayers are with you and your family as you proceed through the next phase of your lives.
Thanks, friends. I won’t be disappearing. Just going to be pulling a lot of weeds this weekend. Quite cathartic.
Hang in there, Kris.
Janet, my heart breaks for you and admires you all at the same time. God bless you and your family. Yes, Pete is in a happier state.
Well, some bad news for me. I was getting set for my 2nd chemoembolization when the Onc decided he wanted scans first. I had chest and abdominal CT done Wednesday evening. Thursday morning we were told I now had mets (couple of small ones) on my lungs and the area of adenopathy in the hepatic area had enlarged further, so any further embolizations were cancelled. Now, they would like me to participate in a clinical trial.
Going to take a few days for me to gather my wits back together and decide what I want to do from here.
Welcome, Dana. Prayers being sent your way. Give my best to your Mom and let her know there are lots of folks pulling for her.
You are a great example to me, Cathy. Congratulations. I am told I will not ever be cancer free, but I plan on proving them wrong. 3 years from now, I plan on whooping and hollering with a big ole’ smile on my face.
Here’s to your continuing great news for 3 more years.
Cheri, my thoughts and prayers are with you and your family. “Cling to that which is good”.May 29, 2012 at 9:30 pm in reply to: Through my husband, i join this very scary world of cholangiocarcinom #61427
Nothing like this kind of news to “take your breath away” in the bad sort of way. The bad way is to land on your tailbone and get the wind knocked out of you or the proverbial “getting hit in the stomach with a baseball bat (cricket bat, for those in the UK). My heart strings are pulling tight for you and your husband.
Susan, find out all you can and never “settle”. The fight has begun, so give it all you’ve got.
God bless you both and hang in there.
I had never heard of “Bland” embolization until you brought it up.
I did well on my chemoembolization. The procedure went smoothly, although the doc said he couldn’t get chemo beads everywhere he wanted because my previous chemo (only 5 treatments gem/cis) had already damaged some of the blood vessels.
I had major pain for a while. It was supposed to be just an overnite stay but I got an extra night because we couldn’t get pain (in the liver) controlled via oral meds until the 2nd day. Pain gradually dissipated after 4-5 days, then it was gone. I’ve been a little tired, but nothing like it was with gem/cis. I’m scheduled for a second treatment in a couple of weeks.
Just want you to know that my prayers and thoughts are with you as you begin to put life back in order. I have this disease myself but I cannot imagine the feelings you had to go through in such a short period of time.
I spent considerable time yesterday just sitting in the shade in my backyard, feeling a little bit of a breeze, listening to the animals, birds chattering, horses chewing hay, chickens scratching in the dirt. It was truly peaceful and wonderful.
Take some time to sit and ponder the great times, feel the breeze and listen to the birds.
God bless you.