mvg

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  • in reply to: Dad diagnosed ICC 9 months ago #75670
    mvg
    Spectator

    I’m sorry I haven’t “gotten back” to you all, and I appreciate all of the supportive comments. The last week has been trying, but I will address all your posts above, and update you all on my Dad’s progress. It’s comforting and informational to hear from you all. For now, I just wanted to tell you guys that my mother and father are getting remarried in a few hours. Unfortunately, it’s at the hospital chapel – my father has been staying in the last 5 days. God Bless

    in reply to: Dad diagnosed ICC 9 months ago #75667
    mvg
    Spectator

    Hi Nancy,

    Thank you for responding. “There is no cancer in my liver or elsewhere..”.

    Just incedible. Gives me chills to read that, and I am so happy for you. Coming up on 4 years fo you- have a great anniversary, and many, many more!!! And it gives us all the more hope. And I pray that everything w/ your ovary will be fine.

    When my dad was first diagnosed, I wasn’t even hearing 5 years as a “cure’. I though 5 years was BS. No way my am I settling for that sh*t. Sadly, realistically, I think- 4 years..well, I know my dad – well, he would say he would take 4 good years. When I once told him I want to be living donor if I could. No, I said I would give him my whole liver – I meant it. I am single. No kids. Maybe that is my purpose. It is nuts. Would never happen. He said I was crazy to say least. I am on computer at Dr. Bruckner’s and I have to get off so I am sorry if the rest is muddled. And the computer is malfumtioning, as is my brain.

    You know, I would never bash a hospital, but I am coming close as I keep hearing stories about Sloan. Personal stories and otherwise. I know it’s a great hospital and no doctor/hospital is God. Further, I do read great stories about Sloan.

    But when you are told something w/ a certainty-Seemingly, and to layperson. That, to muyself, smacks of a God complex. Ego. Ideally, my Dad should have/could learn more. Educate himself to further degree. He went along w/ what Sloan said at every point. Gospel. Nothintg wrong w/ that, maybe. But I would have liked him to ask his own questions. Not just rely on my brother, sister, myself, mom, etc. To know treatment is his decision- based on all knowledge from docs, etc.

    We are here at Dr. Bruckner’s for our 2nd day of cocktails, after the 9-month journey above. I am so ahppy for your success and look forward to meeting you here. It is ironic – to say the least – that we met w/ Dr. Myron Schwartz also in the past, & he said he could do a resection. We liked him, but since no ogher surgeon including Dr. Kato came close to saying yes, we declined.

    From following this site closely for 9 months – I signed up in April but didn’t post until yesterday – I know about all the long, brave journeys. And you epitomize such a journey. The ups and downs. Successes and recurrences.

    Thank you again. I will look at my Dad’s schedule and see if it coincides w/ yours. I dont have my phone w/ me but if you would like call me any time…718-344-4622.

    Marc

    in reply to: Dad diagnosed ICC 9 months ago #75663
    mvg
    Spectator

    Hi Randi,

    Thank you very much. And just one look above- all you have gotten through. And no doubt will continue to successfully beat. Thank you again.

    Marc

    in reply to: First time posting #75559
    mvg
    Spectator

    Thank u Lainy. I deleted my initial response that appeared here because it introduced my Dad as a new member and is in the wrong place…I apologize to Jane, the original poster. Jane, though I am introducing my Dad as a member today when My stupid self finds the right place to post it, I have been following this site closely since My Dad’s ICC diagnosis 9 months ago. And though I too am so sorry you find yourself here, I KNOW you are in the best, only place for knowledge, inspiration, support, hope, etc. I’m happy your husband is doing well and hope and pray he goes on to get stronger and better.

    in reply to: First time posting #75557
    mvg
    Spectator

    I’m sorry. I tried to introduce my Dad as a new member here and Posted in the wrong place. As I did not yet read the initial Post, I wish them the best and will read it in detail later. I cannot read it now because I’m with my dad who is on his way to get treatment as we speak.

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