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I was also seen at Stanford for the Cyberknif technique. I saw Dr Karyn Goodman and she thought I was a very good canidate for the proceedure. They would put me on the oral chemo “Xoldia” (sp) to weaken the cancer and then give me six weeks of cyberknife, two hours a day, five days a week. This is a very precise proceedure and from what I have heard has had amazing results. Dr. Goodman thought she could help me by diminishing the size of my tumor and by zapping the many small spots on my liver. I was truly excited to get started on treatment but now my insurance company doe not want to cover it and has denied my claim. Be sure to check with your insurance company for available coverage. I hope this info helps and that youo get better soon………….Pat
Thank you for writting and sharing some tips with me. The insurance company told me today that they are upholding the denial because they think the same treatment is available here in Oregon. Well I called OHSU and was told they do not do the type of treatment that I need. I think it should be against the law for them to be able to jack us around like they do. The are only adding to my misery and sometimes I dont think I can take much more. Thank you again for replying. I deeply appreciate all the help I can get. Pat
This is a wonderful way for people to come together and share information. Thank you for taking the time and energy to put this site together for the benifit of our families, caregivers, and all of us diagnosed with cc.
My name is Pat and i am 64 years old. I was diagnosed November 2003. I will have to go over my records to get the information on all the chemo treatments i have been on. I promise to do that soon. My tumor has advanced into my liver and continues to grow. My Dr says that stage one clinical trials is my only hope. I feel and look fine. I have no pain and the only ill effects have been from the chemo. I am off chemo now and other than feeling anxious and depressed I am doing well.