nancy23
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HELP!!!!!!!! ANYONE!!!!!!!!!!
I had a recent pet/ct scan I have (cholangiocarcinoma) I have 2 lesions on my liver and one in the soft tissue in the rt side of my pelvis. They have grown in size but no new progression elsewhere. I was dx July 25, 2008. had a cholecytectomy and a liver resection with 40% removal. I have been on Gemzar alone then Gemzar/Cisplatin and soon to start Gemzar/Xeloda. All the drugs helped for only the 1st scan then dont seem to help. I feel I am now running out of time and drugs. Has anyone had success in reducing the size of their tumors??????? I’m frantic and SCARED!!!!!!!!!
Help!
I signed in as a new member on Friday March 26. I’m not sure how this all works that day I got 2 repliies from marions and gavin. I can’t get back to see if there are any replies. I don’t know how to chat or continue with this site. Can anyone give me hints on waht and how to do it, Thanks.
Dear Marion,
Yes I will be getting more chemo tomorrow with Gemzar and now instead of Irenotecan Cisplatin will be added. I hear Cisplatin is more volatile though. I am just scared to death when I get chemo. I’m scared to take chem and scared that if I don’t that I may miss something that may work. Even though my oncologist said chemo won’t cure and that there won’t be any remission. I’m afraid of giving of hope I feel if I do I might as well start digging my grave. No medical personnel will give me any hope. I,m so scared about tomorrow.Sincerely,
Nancy
P.S
I’m not computer savvy and am not sure how to work these blogs and suggestions that you have would also be appreciated
hello, I,m a newcomer to the sight but not a newcomer to CC. I was diagnosed in July 2008. Had a liver resection with a gallbladder removal, chemo and radiation. After the surgery I went from being clear to having a few tumors in my liver and some lymph nodes to having more tumors. I just had to local opinions in the PITTSBURGH, PA area for both to say I’m pretty much screwed. They just want to change one of my chemo drugs. The reading I did says it’s potent and doesn’t do much for CC but that’s supposedly the only protocol for CC. They told me I might want to try Sloan Kettering in NYC or MD Anderson in Texas. Since they are research facilities they may know more even though all the doctors said facilities don’t hoard information whatever is out there is for all to know. I f this is so why do I need to travel to find out what any doctor should know about CC. Has any one had any better luck at any of the Nationally known cancer centers? If so I would like to hear your story. I’m starting to loose hope since especially no one in the medical filed can give me any. Sincerely,
Nancy/Pittsburgh, PA
